Tips for coping with Achalasia
Posted , 71 users are following.
Helpful Tips Collated from Fellow Achalasia Patients
NB These have not been vetted by the medical profession but are what have worked for some of us
Tips for coping
1Eat smaller meals more frequently.
2Eat slowly and chew well
3Don’t eat too late
4Beware of eating when feeling stressed
5Eat fairly moist food
6Lifting the chest and taking a deep breath also helps.
7Keep a small bottle of water handy in case one’s oesophageal muscles go into spasm when out and about
8Don’t have drinks too cold
9Eat early in the evening
10Don’t drink before bedtime
11Don’t eat too many nibbles such as crisps and nuts or drink too many glasses of wine before a meal in the evening (I know one should only have 1 or 2 glasses of wine but . . . !)
12A good start to the day is a fruit smoothie using a wide variety of fruit liquidised with a live yoghurt and probiotic (actimel) and a good teaspoon of manuka honey.
13Multigrain toast with Somerset brie is also a favourite, helped down with hot water.
14With a good variety of nutrients early in the day, I don't have to worry about having to eat much else. Ironically, that then makes it easier to eat.
15Always have a drink with the meals: sparkling types can be beneficial, and gulps between every few mouthfuls help
16My most important factor in managing my eating has been drinking hot water (temperature is important - half cold and half boiling). Mastering a technique which worked for me took time, but is worth it because I am now comfortable eating out and the only downside is the copious amounts of hot water I might need to drink to get the food down. The technique involves judging how much food I can eat before I have to gulp down some water.
17Soups are a good way of eating a variety of nutrients as they can be liquidised. I include all vegetables and pulses and experiment to get something I really like, sometimes topped with cheddar cheese.
18I avoid eating skins on fruit and veg, but do churn them up in smoothies and soups
19I avoid fatty meat and eat mostly chicken, fish or vegetarian dishes. I can even manage pizza if I drink enough hot water with it.
20I also avoid spicy food and drinking alcohol with food is very difficult.
21Salads are best eaten with lots of dressing and in small quantities.
22Be aware of the types of food you personally need to avoid, and what can be digested easily.
23I avoid the following:-
a) Large lumps of meat. The only meat I consider eating is mince usually in the form of a cottage or shepherd’s pie.
b) Dry chicken can be a problem. Meat in a sauce or casserole is usually better than anything else.
c) Pasta of any sort.
d) Too much bread. I can eat crackers better than bread.
e) Potatoes can be a problem if boiled but thin french fries are not too bad.
f) Rice. My first bad experience of Achalasia was with a dish of paella. Fried rice is better than fluffy stuff.
g) Spotted dick or similar dry sponge puddings are avoided.
24Food that gives me little trouble:-
i) Soup
ii) Fish - salmon or battered cod seem good.
iii) Salads
iv) Stir-fry food is usually fine
v) Funnily enough quiche or similar is usually not a problem
vi) Cheese with crackers
vii) For dessert ice cream is best.
25Basically it seems it is the consistency of the food which has more influence than anything.
26Don’t eat too much bread in one sitting and eat good quality bread rather than soft white bread which is particularly bad for blocking the oesophagus
27Avoid very dry food like falafels, raw cauliflower, raw carrot
28Best foods were weetabix, readybrek, custard, sponge puddings and mashed potato. . Not the most healthy range but I was advised by the dietician at the hospital that it was more important to keep my calorie intake up than eat healthily.
I was prescribed Fortisip milkshakes which were a lifesaver as they are full of vitamins and nutrients.
29Probiotic pills/Acidophilus powder as a major part of immune system is in one’s gut
30Echinacea and Manuka honey to boost immune system
31Sleep propped up with lots of pillows (before the operation) to help stop food and drink coming back up at night
32A bed wedge is a useful alternative to lots of pillows to keep you propped up at night.
33I always finish the day with a good teaspoon of manuka honey and lemon juice in hot water. This is after I have ensured as much as much as possible that all food has been washed down. That way I am left with manuka honey in my oesophagus overnight. I haven't had a cold for the last couple of years so I think it might have given me some protection.
34Relaxation helps to avoid spasms and pain with the sphincter.
35I find yoga helps as does drinking hot water to relieve the pain.
36Pain from the sphincter can be avoided by warming up cold food and drink in the mouth first before allowing it to go down. Avoid letting the chest get cold. Cold wind can set up pain. |I wear a scarf even if I don't feel cold.
37Talk to other Achalasia sufferers. It helps so much to know you’re not alone!!
7 likes, 86 replies
tinmb22
Posted
They meet up every 4 months - therefore please contact them for the next meeting date if you would like to share your experiences.
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Guest
Posted
Guest
Posted
RICE was always the worse thing, and it still causes a problem, so I now avoid it. I had the operation last summer. Much better now, but still have problems if I eat too quickly. Also it is essential to drink plenty of water with a meal. I always start the day with porridge. Yogurt is a good sweet.
Thank you for the information.
Guest
Posted
Bread is so bad also, crackers are okay, salads are great, corn flakes is well swallowed too.
I avoid meat/chicken/fish chunks...i need saucy stuff.
Pasta is okay for me...
But my main problem is that I have been a fast eater all my life...i dont chew and i cannot stop this now
I get spasms all the time too in my sphincter very bad ones that i burst in tears...
ed95295 Guest
Posted
For spasms ask your doctor for Dicyclomine Hcl 20mg tabs. The Dicyclomine was a life (and wallet) saver. Any time I start to feel like my chest will spasm I take 1/2 a tab, which usually works. If it doesn't work I take the other 1/2. I had surgery 3 months ago and have only used 1/2 pill once. Good luck.
1blindmice ed95295
Posted
Guest
Posted
I had op last year and swallowing is going downhill already,but hopefully i can maintain it with being careful.
S
dreamweaver Guest
Posted
jacarr1
Posted
I could'nt agree more with this post and and even before coming across tips for coping with achalaisa i was finding myself doing many of these things to cope with this condition so for those of you who are struggling with achalaisa i hope my comments lift this post back to the first page where it belongs
cheers all
jim
p.s. i still have difficulties with just drinking water
mikejdee
Posted
the do's and dont's,.....please bear in mind that what works for some will not necessarily work for everyone.
To recap, Ive had the condition for well over forty years now and have never had medication or treatment of
any kind. To stem the pain of indigestion that occurred habitually in my early days (and I got this severely and on a prolonged basis at times, sometimes for days on end) I used Asilone powder mixed with water or
very often sucked extra strong mints to quell the attacks.
One thing I did discover is that stress of any kind will play havoc with controlling the way in which you attempt to swallow your food. This point has been raised by many and my experiences and findings certainly
confirm that eliminating all the bad "thought" stresses that one encounters without a shadow of doubt does with careful relaxation help immensely when eating.
Many say that fizzy drinks help, some, as above have said that only hot or warm drinks taken or gulped down do the trick. Others say only cold, and if anyone is like me then the drinks have to be iced up to the max before I can even consider any eating. I do know that if the only water taken by me is even so much as tepid (from the tap) or is straight from the supermarket shelf I know by experience that trying to gulp that down would ensure that Id be sprawled across the floor within seconds of any attempt to swallow. This is the problem with achalasia it is such a random condition (the only common factor being the inability to swallow in itself)
that it affects everyone in so many different ways. I cannot begin to imagine how anyone reaching adulthood or later being suddenly afflicted with it manages to cope. In some ways Im lucky because it started with me so very early and so Ive been able to educate myself to take control so that it hasnt totally ruined my life.
Regarding the foods, the only thing I have to watch is undercooked or rare meat, almost a complete "no no" or bread that is over doughy. If Im honest I dont do well with slippery or soup like foods either, which
probably contradicts other sufferers abilities, where they can intake these. This is probably because I force absolutely everything (including other drinks) down with maximum chilled water. Strange isnt it that
one liquid has to be forced down with another one, but thats just my case. There again, I chose never to be treated for this condition and the only thing truly it has gravely affected is that it has limited my social eventing but on the positive side has controlled my weight to the absolute degree because of the disciplined approach needed to intake food.
Bless you all. I know what you go through
Mike.
dreamweaver mikejdee
Posted
tigerlilysandie mikejdee
Posted
Thank you for your comments. 53 years old and my doctor thinks I might have this. It's a little overwhelming at this point but the pain and the vomiting tells me I need to make some serious changes. The worst right now is I wake up about every 6 to 10 minutes at night time with acidic foam in my mouth have to spit out and occasionally wake up covered in vomit
Abel
Posted
They use be Vitamins as their major source of energy,
They have zero sugar, zero carb, and caffeine levels of a cup of coffee....
Abel
Posted
Bread is so bad also, crackers are okay, salads are great, corn flakes is well swallowed too.
I avoid meat/chicken/fish chunks...i need saucy stuff....
dopey
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eric43861 dopey
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How long did it take the sympoms to totally dissapear??
JudeW eric43861
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dopey eric43861
Posted
spencer00501 dopey
Posted
dopey eric43861
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dopey spencer00501
Posted