Vitamin D deficiency, hyperparathyroidism and heartburn.

Hi thanks for reply. Yes i was told in 2013 by the endocronologist that was investigating my slightly raised blood calcium that i had primery hyperparathyroidism and very low vitamin D. He though i did not at present need anything for the hyperparathyroid problem but informed my doctor that i needed to take vitamin D. 

The doctor did not seem to really know what strength of vitamin D i needed to take and just told me to buy some from the chemist or supermarket.  I did buy some but after reading on the internet that you should not take vitamin D if you have raised blood calcium i decided not to risk it.  Now a year later i returned to see the endocronologist to be told my vitamin D will be even lower now and my doctor has got to supply me with the correct dosage.  I have to have a blood test this week and start taking the vitamin D, then have a blood test in 4 weeks when i go back to hospital to see if my vitamin D has improved and that it is not affecting my calcim level. I think he said my vitamin D level last year was about 30.

Has the vitamin D helped with your pains ?  

 

My vit D blood count was 26 and it went up to 52 in three months. I did read somewhere that it takes quite a long time to actually rise while taking supplements, about three months!! I was diagnosed last May so was able to sit out in the sun and I think that made a world of difference. I think the main part of our vit D comes from the sun. 

You are right about the calcium you need to be careful. You do need calcium to absorb vit D. I actually have combined calcium and vit D tablets. As it is estimated half of the UK population are deficient in vit D I am amazed your GP does not know more about it. I initially got mine over the counter and the pharmacist was very helpful when I asked what I should do. 

Hope my vitamin D levels rise as quick as yours did as i also read that it can take a long time.  I was originally told years ago by a previous doctor that it was fibromyalgia causing muscle pains.  As pains have increased over the years i was referred to hospital for more tests and given the diagnosis of primery hyperparathyroidism and multiple myalgia's with low vitamin D. I do feel sometimes that both doctors and consultants have seemed unsure exactly what is causing my symptoms.

I do like to sit out in the sun when not working but maybe my body cant absorb enough vitamin D.  I am really hoping they have got it right and i can feel better as its getting worse each year.  

 

I really enjoyed lying out in the sun with a book, a cup of tea and a biscuit. I normally rush round the place so it really slowed me down and made me relax. 

The fact you have tender muscles does sound like fybromyalgia, which is very painful. A friend of mine takes tramadol for it.

Multiple myalgia sounds a bit of a get out by the doctors as it just means you have lots of pain!

Hyperparathyroidism is more serious and will be the reason for your high calcium, which is not a good thing, worse than high cholesterol. 

 

frances02122,

My White Blood Cell Count is 3.8 and my Vitamin D is 28.4

Both have been going steadily down for years.  I have just started taking 20,000 IU of Vitamin D a day and I have been sleeping better than I have in years and my body has been feeling better than it has in years.  I have been taking 20,000 IU of vitamin D for 2 months now and it has made a HUGE difference in my life!!

Not only do I feel better in regard to my sleep and my back but my mood and disposition is brighter and better than it has ever been!

Please let me know how you are now doing and how much vitamin D you are currently taking a day.

Thank you!

 

Hi there i was on 60,000iu weekly for 12 weeks for vit d def.When nothing at all improved after months as regards symptoms i was referred to an endocrynologist.After more bloods and a 24hr urine collection,kit was confirmed i have primary hyperparathyroidism.I am on the waitng list for surgery.I have to have a dexa sxan to check for osteoporosis,A kidney scan to check for stones.Also an MRI tosee if possible which of the four glands has the tumour.Only surgery will solve this condition.In the meanwhile we are open to vit d def,osteoporosts and kidney stones,so best to follow up.All this info is direct from my consultant.

T

Hi so happy for you that the pains went for you, it gives me hope that one day i may be pain free or at least bearable. 

My pains are mostly muscle and joints i think, i get shooting, burning and tearing things. I have learnt to try avoid sudden movements and heavy lifting. 

I am just hoping the vitamin D does not raise my calcium levels.

Hello just reading the thread. As you mentioned your prolactin level is too high. Because of your age I would like to mention that it may stop you falling pregnant. My friend was unable to have children for 15 years until they found out she had high prolactin. When it was resolved she got pregnant very soon and even had another child a year later. By this time she was around 40 wish she knew before.... hope it helps.

Hi Reema, thanks for reply. I am awaiting result of vitamin D test but over a year ago i was told it was very low so they expect it to be much lower now. I have so many health problems which have got worse over last few years i am losing faith in doctors. I think the feeling of muscle ripping is awful, it makes me very careful not to twist or lift anything heavy in case it happens as it leaves muscle burning for days. 

Will let you know what vitamin D level is when i get results, my doctor is supposed to be phoning with results when he gets them and to give me a prescription for the vitamin D.

Dont worry. You will feel better after vit D supplements and start taking food wch contain vit d naturally. Start that by urself.

Do let me know ur level. All the best

Hi Reema, thank you and will let you know when i get results. Hope everything goes well for you MRI. Best wishes.