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Bristol Area sufferers from illness diagnosis CRPS?

Posted , 8 users are following.

carol91733
carol91733

Please is there anyone out there suffering from an illness called CRPS local to Bristol area I can talk with?

1 like, 10 replies

10 Replies

  • buggyboys
    buggyboys carol91733

    Posted

    I dont live in Bristol but would be happy to talk to you and tell you what I know

     

    • carol91733
      carol91733 buggyboys

      Posted

      Do you live in UK though? I would love to hear anything you can help me with?

      Sincere regards Carol

  • jane68688
    jane68688 carol91733

    Posted

    Hi Carol

    i live near Woking in Surrey i would also be interested to know if there are any UK sufferers as most of the people seem to be in US that i have spoken to 

    • carol91733
      carol91733 jane68688

      Posted

      It's great to get to talk to you as we have both said its rampant in USA! We have a clinic in Bath that specialises in CRPS!
  • Francesca777
    Francesca777 carol91733

    Posted

    Hello, I am a 54 year old lady living in Bath. I was diagnosed with CRPS just over a year ago. I see a GP, a Rheumatologist, a Consultant anaesthetist who specialises in CRPS pain relief and  Physiotherapist, (who was the first one to spot the symptoms. I am on 400mg a day of Pregabalin, 1000mg a day of Naproxen, 30 mg per evening of Amytryptiline and paracetamol every four hours.

    I feel as if I've learnt quite a lot over this past year. I understand t pain and the pain relief. I now know the difference between feeling neuropathic pain and nociceptive pain. How can I help you?

    • carol91733
      carol91733 Francesca777

      Posted

      Hi my name is Carol we are of similar age, although I am four years older than you, how did your CRPS start and in which area of the body, I have CRPS 3 in my ankle, I have had it now for three years and its seems to be getting worse, please can you tell me what treatments have you received and how much help have you received, I seem to keep battling on my own, I am on a lot of medication, including Morphine, which I don't necessarily believe is the answer to getting my foot working again, its in constant pain, please can you try to explain to me the differences your expressing and give me any help or guidance to getting the correct treatment required?  
    • antscott
      antscott Francesca777

      Posted

      HI Francesca, mind if I ask you a few questions? I suspect I have crps and could do with some advice.

      Thanks

  • english_lady_in
    english_lady_in carol91733

    Posted

    I used to. live in Bath I now live in France .After a my leg was fractured in 3 places,just below the knee I was diagnosed with Cps my Os picked this up at about 11 wks and a scintigram confirmed it .I was taking paracetamol ,oxycontin and oxynorm (quick acting !) Plus tramadol until it started to upset me .I now have NO morphine  ,just 4x500grm paracetamol instead of 8x500grm .I have a TENS machine ,physio 2 a weeek and Iyrican ( this I believe opens the nerve pathways )I try to practice relaxation techniques and do my physio exercises most days ( trying to be honest !)Have you asked for a scintigram or physio ?
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