1. Community
  2. Skin and nails
  3. Steroids

PMR stiffness, weakness and pain all day and night!

Posted , 4 users are following.

misdiagnose
misdiagnose

Speaking to someone this morning. "I can't possibly have PMR because it says sufferers get symptoms for the first 30 minutes in the morning. Mine last all day and I'm unable to move at night". Same here I said! In addition to the prednisone (and I take enteric coated because I get gastritis otherwise), I have had a new bath with 3 grab rails so I can get out of the bath and almost pulled the stair rail off the wall because I was needing to pull myself up stairs. My colleague said 'so little is made about how anxious and depressed I feel and every dosage reduction I feel so cross'. If patients received better quality treatment, they would not be so cross, anxious and depressed! And then my colleague said "Why don't the manufactureres made half a miligram tablets? Good question! Everyone wants them but the manufacturers don't produce them! Hey someone needs to go into business making them! Just another aspect of the poor treatment that patients get in 2015!

5 likes, 4 replies

4 Replies

  • jeannae68307
    jeannae68307 misdiagnose

    Posted

    Hi, I experience the same thing.  The pain does not let up after I take the steroids and I'm in pain most of the day but I've been to two endocrinologists and they think it's PMR.   I have tried prednisone and couldn't tolerate.  Switched to prednisolone and put on a bunch of weight and felt drugged.  Just switched to the short acting hydrocortisone.  Have a lot more pain so I will try it for a couple more days before I yell for an intervention and drug dose change.
    • jean1948
      jean1948 jeannae68307

      Posted

      Hi, i was interested to read your post. My doctor suspected that I might have PMR, i had no stiffness in the morning in fact I was better in the morning than later in the day, the pain was in my upper arms and shoulders. All blood tests came back normal, he prescribed 4 days on prednisolone at 60 mg, until he had the blood test results. The pain in my arms did not respond, he then said he wanted me to take 20 mg for 4 weeks which I did, it made me feel really sick and kept me awake, still no response with the pain in my arms and shoulders so I have stopped taking it. I have an appointment to see a rheumatologist in a couple of weeks, it will be interesting to see what the outcome of this is. I feei have been taking it for nothing!l
    • jean1948
      jean1948 jeannae68307

      Posted

      I find it strange that you have still been diagnosed with PMR after having no response to steroids because according to all the blurb one of the ways of diagnosing the condition is that PMR has an amazing response to steroids. I have this problem myself, I only have pain in my upper arms and shoulders but after 4 weeks on 20mg of prednisilone and 4 days of 60 mg no response whatsoever, they made me feel grim so I have stopped them as I felt I was taking them for nothing.
  • james82021
    james82021 misdiagnose

    Posted

    Hello, mosdiagnose. I don't know if my comment is helpful, but several years ago I developed PMR. Before the diagnosis I suffered for several months with constant pain, and wondered if I would ever be able to live a normal life again. My GP referred me to a rheumatologist, but it took several weeks for me to get an appointment. (Here in the US that's not unusual.) When I got to the specialist's office I expected to have a physical exam, but instead was interviewed by his assistant and completed a questionaire with her help. Five minutes after completing it, the specialist came in and told me that I had PMR. He put me on pred, and within 48 hours my pain was history! What a blessing. My point is that I have to think that your misery may be from another source. I do so hope that since it's been several months since your writing, you have gotten a correct diagnosis and are no longer in misery. I guess that PMR can't be diagnosed by lab tests, so it is just a matter of recognizing the pattern of symptoms - not a very exact science!

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.