Posted , 11 users are following.
Hi All, my 9 year old son has been diagnosed with oesophaeal Achalasia and yesterday after the endoscopy, a surgery seems to be the next step. We have been looked after a doctor in Bristol Children hospital and the paediatric surgeon who is going to do the heller Myotomy said based on the fact that this is a rare condition - especially in children - he has operated on 3 children so far and suggested that he either does the surgery with two of his paediatric colleagues for which he can potentally offer us a date in the next couple of months or the option would be to pull in a more experienced adult surgeon however the complications that come with this may delay the date to an unforseen future. there was no indication as to how long this delay might be and considering that after 2 years of chasing the doctors to get an appointment to check his condition, I was worried to miss the opportunity and agreed that he does the surgery. However knowing that it is very important to have an expert on board, I am now worrried even more that i may have done the wrong thing by 'rushing' into it and perhaps end up with complications afterwards. If anybosy has had experience and knows doctors who have performed this on children, please do let me know, I dont want my son suffer any longer and but then I dont want to cause him even more pain and longer term damage. please help! thank you!
0 likes, 22 replies
Tracy3105 sengulb
Posted
sengulb Tracy3105
Posted
bill87487 Tracy3105
Posted
ChokingVictim Tracy3105
Posted
I wish I could be more help when it came to the fact that your child is having trouble. I am 29 years old and had the poem procedure about 2 weeks ago. I have been diagnosed with Type 2 achalasia I live in the Boston Massachusetts area of the United States. I have lost a lot of weight and I've tried the Botox procedure it really only lasted me 2 to 3 months they say the younger you are the faster your body resists the Botox and in a 7 year old I can only imagine that it may not last as long as some of the other people that you received comments from. I am recovering well from the poem procedure and strongly suggest that you inquire about it many doctors here in the United States are familiar with this procedure and even if you have to take a little road trip for your child to feel better I think it would be worth it. I've been suffering with achalasia for well over 7 years and nobody truly understood what it was until I went to Boston they have many GI specialists who are familiar with this disease. Even if you were just to reach out to Massachusetts General Hospital to ask some questions and see if they can refer you to a doctor wherever you are that can help you.I couldn't imagine being 7 years old and suffering like I was. I pray you find your child help as soon as possible so that they can live a normal life. Im sorry you even have to deal with this.
Tracy3105 ChokingVictim
Posted
ChokingVictim Tracy3105
Posted
I look at these message boards on my phone and I never seem to reply to the appropriate person I'm just going to keep reading and stop trying to put in my two cents sorry about the confusion good luck with everything
jody76982 sengulb
Posted
Tracy3105 jody76982
Posted
john1806 jody76982
Posted
I am currently seeing a specialist at a hospital in Chelmsford , his name is Dr Sri Kadirkamanathan< he="" is="" supposed="" to="" be="" one="" of="" the="" best="" upper="" gi="" surgeons="" around="">< hopefully thats the case . i live in luton .
have you had your procedure already
thanks john hopefully="" thats="" the="" case="" .="" i="" live="" in="" luton="" .="" have="" you="" had="" your="" procedure="" already ="" thanks=""> hopefully thats the case . i live in luton .
have you had your procedure already
thanks john>
sengulb jody76982
Posted
mum_of_H sengulb
Posted
sengulb mum_of_H
Posted
mum_of_H sengulb
Posted
sengulb mum_of_H
Posted
john1806 sengulb
Posted
Thanks
John
sengulb john1806
Posted
Join this discussion or start a new one?
New discussion Reply