Scared to death about possible Huntington's Disease

I think that it is very unlikely that you have Huntington's Disease. I think you are worrying too much and maybe too much caffeine in the Coke isn't helping your nervous system. The best thing would be to see your GP and discuss how you feel and take it from there. It is so easy to look up things on the internet and convince yourself that you have them.

Fact: Huntington's tends to be hereditary. My friend has it, so does her mum and various other relatives. She has many symptoms that overlap with other disorders.

Fact: too much caffeine can make you jittery and affect your nervous system.

Take it easy and cut out the Coke and talk with your doctor about how you feel.

Being anxious and worrying too much needs to be addressed and I know because I have always suffered with these problems. Maybe talk to a trained counsellor who treats anxiety issues.

Good luck and try get some help.

Hi John, you don't have any Huntitington's disease. I think you need to see your GP, you seem to be suffering from anxiety and depresion is why you think you have any disease you read through the Internet. Stop reading illneses through the internet, this will end up making you more anxious and more depresed. You need a little bit of help from your GP and your family and you will be fine, I promise you.

iv inherited huntingtons from my dad who we sadly lost this year. to be honest u sound like u got bad anxiety and depression, see ur doc.

Hi john I am going to say to you that I think it's possible you are worrying over nothing well I mean nothing as bad as huntingtons I have got a daughter who is end of life at the moment with HD I lost my husband , my mother in law , my sister in law now my grandson has just been diagnosed with it so I have had over 50 yrs of this dreadful illness but my advice would be speak with the HD society they are wonderful helpful people but the illness is only inherited please don't worry I think it's something a lot worse than HD hope this has helped as I wouldn't wish this illness on anyone x

Hello John, your post was one year ago. I was wondering if you have had a

Genectic test yet? 

I was tested positive on August 22-2016. I do have some symptoms/

I think my first symptom was I have a short fuss. go off for no reason.

then depression, fidgety like i can not be still. i have so many . I have 

found that there are some same and some that are different in all cases.

this disease runs in my family. I lost a brother this year in may. 

I thought if you needed someone to talk to I am here..

muscle twitching can be as simple as a vitamin deficincy. have your doc test your blood for mineral and vitiamins, see if anything is low. If it is low, as why and get a good answer, amke her take more tests to find out why until you get an answer. I had weird symptoms when I was a kid and everyone brushed me off. i didn't find out i actully did have a disease. It was Celiac (USA spelling) and everyone should get tested if they are having strange symptoms. it is a common disease, epedemic actually.  I read that 1 in 120 people are likely to have it. THAT is a LOT of people!  But 80% of people do not knwo they have it till it is too late. 

I hope you just need sups!  Having a disease is very hard to live with. No one cares if you are sick most of the time and they treat you like you asked for it.  i sense people irritaction when I can't walk fast enough. impatience of the young we all get here.

i digress

if your symptoms are not serious, go out and have fun!  Life is too short to worry about stuff. It will happen at some point in your life if you live long enough. We are all of the nature to get something. Try not to think about it, there are better things to do. distract yourself in something fun, like art, ormountain biking, dancing, anything! 

go outside and play as i used to tell my kids 💙

 

I would not think you have Huntington's.  I also have a lot of symptoms of Huntington's disease, but a lot of other diseases also come up.  I think there is no point in worrying about something until you see a Neurologist and he or she confirms.  I am 59 and within the last week I have had what I would call full body spasms or tremors, my Gp has set me up for a CT scan and MRI because they need to rule out a lot of things that could be causing the spasms and Abnormal gate.  Until you have all the tests to rule out all these things don't worry about something Huntington's.  I wish you the best and go see your primary care doctor.

Hi John.

Guess What? You definitely don't have Huntingtons. HD is an autosomal-dominant hereditary disease, and yes, it has to 'start somewhere', but I can guarantee you that if your parents and grandparents 'definitely didn't' have HD, you don't either.

It sounds like you struggle with a moderate amount of depression and anxiety though--I would start by building a good support network--get a therapist or counselor and surround yourself by family and friends who have a positive and healthy outlook on life. Seek spiritual counseling or attend worship services in your religion or a non denominational church. Attend support groups. Try medication for depression and/or anxiety if you and your doctor feel it is warranted.

I also think that yes--you may very well be making yourself jittery and shaky by ingesting large amounts of caffeine. Balance it out with a moderate sized healthy breakfast with protein, switch to green tea, or spread it throughout the day in smaller doses. Stop smoking if you are a cigarette smoker or user of tobacco of any kind--it actually makes you worse (although you should seek the advice of your GP durimg the withdrawal phase). Avoid recreational drugs, seek balanced diet, and try to get at least 30 minutes of mild to moderate excercise a day 5 days a week depending on your abilities and needs.

Anxiety and worry are very real, so don't let anyone make you think this is your fault by saying its 'all in your head'. Let me reiterate however, that you do NOT have Huntingtons disease. You dont. Am i sure? Yes. Absolutely 100%? Yes. No HD.

Good luck.

Jayla

I wonder if your symptoms continue, I'm experiencing similar things, especially twitching and fast movements, can you respond?