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i had a laparoscopic test done recently and was told I had endo, my pain is daily, I'm constantly bloated my bowel is enlarged as the endo has presented there, it is also in my bladder. Consultant recommended pro stap, jeeps looking at the side effects I am pretty scared. What I'm asking is.
a: do women with endo have constant daily pain, or just every month?
b: has anyone had Pro Stap and how did they manage.
Many thanks
1 like, 63 replies
summer200 Mutley
Posted
Endometriosis so I know how you are
Feeling
I had the pain all the time and it
Was worse before and during periods
Looking back it controlled my life
And I missed out on many things
It was also on my bladder bowel cervix
I had to be admitted every year to have it removed under a general this was painful
I tried many medications but nothing
Helped
I know other people who have tried
Prostap and they have found relief
So could be worth a try
I had an hysterectomy in the end and
This worked for me I still have bladder
And bowel problems due to the
Endo I wish i had been able to have
My hysterectomy sooner but
It took years of me asked to find
A hospital to agree
I hope you feel better very soon and find
A solution that works for you
Mutley summer200
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summer200 Mutley
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Bladder
I have to take medication each day
Also to control my bowels
All of this has been caused due to the
Endo 😞
Do you mind me asking how long
Have you had endo and what other
Treatments have you been offered to
Help
Mutley summer200
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moon92655 Mutley
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b: I have been on leuprorelin (Pro stap) The 3 month shots are heavier as it is a longer "cycle" than the 1 month shots. I did not manage well on them, and it got worse with time. It is not a long term solution, but some manage better on them.
Surgery, bowel-resection helped me with the pain, but it has it`s risks, which can be serious.
Mutley moon92655
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moon92655 Mutley
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If you go for Pro stap, I would do the 1 month shots. The first months you may not notice so much..but by the end of the second/third you probably will. It is also known by the name Lupron, and if you google it, you will find many warnings.
Even if I had read all the warnings, I decided to take the shot, because it was supposed to be for just a few months, it turned out to be much longer.
I was on it a long time, in the end my short term memory was so impaired, it was like what I imagine alzheimer to be like. I was like a zombie in a fog, I could not get out of bed..and I have never been like that before in my life. It was not like a depression, even if it can be experienced like one. I simply had no emotional/hormonal energy to mentally motivate myself to get out of bed. I could not think ahead. I could not think from point 1 to point 2 in the end.
Now when I am off that medicine, I can get out of bed again, my memory is restored and I`m functional again, like before those shots.
The brain is filled with receptors for hormones, affecting our cognitive function. Without any hormonal production the brain`s signals slow down. This affects some worse than others, also depending on their life and work/study situation.
The first 6 months I kept thinking it was going well compared to many patients horror stories..I kept thinking that with increasing doubt over the next 6 months too. But eventually it was so bad, there was no doubt I had to get off the meds.
I now use provera, I adjust how much myself. So if I feel more pain, I can take a little extra and it keeps the pain under control. For me it is far better, and I should have gotten off the shots sooner than I did, I know that now.
If you are doing the shot as short term treatment, then I would not worry so much. But in the long run you will need some kind of treatment.
Even if you take the shots, you can always stop taking them if you react badly.
Always keep in mind that you are on a medical treatment that may affect you, so that you can separate between what is you and what is the medicine.
Bowel surgery is not usually so bad, if all goes well, sounds worse than it is. Depends if the Endo has grown into the bowel or if it is only on the surface. If its on the surface, then they shave it off. If it has grown into the bowel, then they do a resection. But there is a small risk of a (usually) temporary colostomy. And if that happens, you can get severely ill a while. But it rarely goes that wrong.
The pain I experienced from bowel endo was horrific, I could not crawl a few feet to get pain meds. under a cramping attack. So for me the bowel surgery gave me my life back.
susan76008 Mutley
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Mutley susan76008
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coral2786 Mutley
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Mutley coral2786
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susan76008 Mutley
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coral2786 Mutley
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Mutley coral2786
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summer200 coral2786
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Aged 37 I had endometriosis severely its affected my bowels and bladder
I was able to keep my ovaries
No more pain its got better as time
Has gone on
For me its been a life saver in a good
Way.
summer200 Mutley
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After the treatment
Hope you feel better soon
Mutley summer200
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Yes I hope I feel better too. You have cheered me up indeed. That's the way I want to go. I'm so inflamed right now. Bowel prep has nothing on prostap, Lordy lord I have never had such an evacuation of my bowels. Sorry too much information.
coral2786 Mutley
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coral2786 summer200
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coral2786 Mutley
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coral2786 Mutley
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coral2786 Mutley
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Mutley coral2786
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coral2786 Mutley
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coral2786 Mutley
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Mutley coral2786
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coral2786 Mutley
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coral2786 Mutley
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coral2786 Mutley
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coral2786 Mutley
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coral2786 Mutley
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Mutley coral2786
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Hope you've had some good news! If any at all.
I'm going for scan on spine next week. Been referred to pain clinicm they want t to check my nerves before I go, doubt there's ant damage there, real waste of time but there we go. You let me know how your getting on and I hope your OK.
coral2786 Mutley
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Mutley coral2786
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Coral I hope you get better very soon. You sound like your dispairing right now.
coral2786 Mutley
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Mutley coral2786
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