h1n1 gbs/cfs/cdip help need diagnoses

i use to hunt from start of hunting season to the end of it walking all over

i use to play floor hockey played road hockey challenge, and at church

i use to work 100 hours or more in two weeks yes people there where asking if i keep a bed in the back. before taking sick as a housekeeper at a hospital as a casual

remember when the doctor told you geez i wish you knew exactly when you felt like that well i got all that documented but it don’t matter if the doctors wont make copies of it....., I have documented my problems from when they started giving me trouble on dec 15 2013, As per my job was in jeopardy, threatened by not being paid, for missed appointments for the 3 shots mmr, hep b, h1n1 . By December 5 2013 i made it in for the shots, now prior to this date I worked full time hours plus as a casual housekeeper.

when I was first admitted I "thought" I was diagnosed gbs and treated with ivig and going to phyiso for Gillian berry syndrome. I went to the hospital in a wheel chair after the 5 dose of ivig treatment i walked out back to work 3 weeks later only to relapse .But at the doctors appt I made i was told I was never diagnosed with gbs….

my doctor is out of options asking me what do i think....

well i told the doc

1) give me the ivig treatment

that when i first went into the hospital in a wheelchair and walked out of hospital

answer: no diagnoses no cant just give you something without knowing whats wrong...

2)send me to a microbiolgist 

they can look at my blood and determine if it is a virus

 another appt: which took 4 1/2months to get an appointment with a physiatrist sept 2

now I have been seeing a physiologist which sent me to see the physiatrist who is sending me back to the physiologist "when I am ready to go" i said make it now! if it takes so long to get an appt with you he replied oh i was on vacation it wont take that long you will get a call in 2 weeks..lol its now oct 2

the physiatrist who said it sound like "it may be issues in your past" what part of the mind can make your body go totally numb even when I brush my teeth along with a lot more issues.

symptoms:

when i go to stand and walk i never know if ill beable to get up or where the pain will be...

fatigue: i was in bed forgot pillows on couch to stubborn to ask for wife to go get them on way out to couch fell on floor couldnt move coulndnt pick up my head she came out got my pillow put under my head got blanket i slept there, before that out on the deck on hot day this august feeling kinda weak tried to come in house fell couldnt move wife tried to pull me into house soon as she grabbed my arm pain unreal stayed outside or 5 hours before getting enough strength to come in.

Reduced sense of taste

Feeling Cold :i now know how a cat feels laying in the sun it just feels so good

Muscle Weakness

Loss Of Sense Of Touch when i go out side to sit in chairs my ass gets sitting in a damp chair and i dont know till im told

                hands cramping twitching alot more

Numb/burning/tingling extremities

Heavy Legs feels like im carring around from 5-100 pounds weights

Limited Walking Ability

Pains though out my legs

Muscle Cramps

can`t walk

cant stand

lost feeling in gums most face all of body

i can feel when the hair on my arms is touched but not the skin??

so far i have had:

cat scans

mri

emg

fwave took pic of results

all kinds of blood test

lumbar puncture protin was high .89 after treatment 3 months later .69

 muscle biopsy 

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