vulvodynia

Hi lee yes i am in the menopause.im 38yrs old and im after havin 2 biopsies this yr and the gynea who done the last one said their was no atrophy.ive heard about nerve blocks and im wondering if this could help maybe.thanks so much for replying..

Ive been having irritation for months now..i do have atrophy.What has helped is sitz baths.Basin you fill with warm water and use on the toilet.i soak for 15 minutes..helps alot.other then that hydrocortisone 1 percent has helped me.Doctors apoval and A and D ointment to help moisturise in between.I am now considering taking hormone replacement therapy.also loose fitting clothing,soft cotton underwear and use only water to clean that area.

The hydro is the ointment not the cream as cream can irritate more.

Thanks so much for all the advice lee i really appreciate it.i also suffer with lichen scelerous so i have to use the steroid ointment dermovate for that but only on the external skin.i really sympatise with any woman who suffers with pain or irritation down below im takin hrt about 3 months now and it has helped with my moods its certainly worth considering.

I might have lichens also,not confirmed yet.These conditions caus alot of anxiety don't they.I hope you feel better soon. can i ask what hrt you take..oral or direct cream etc to area?

Hi lee you are so right about them causing anxiety some days im so bad i just want to climb into bed and hide from the world.im takin a low dose hrt tablet called femoston conti.i really hope that you dont have ls as well.xx

Thank you.I am on low dose anxiety med which helps some

look up Vulvar Vestibulitis. Hopefully it will help you.

Hi samantha thanks so much for replying.i also have lidocaine but when i apply it its burns which is normal ive been told but when it wears off im 10 times worse. can i ask if u dont mind how u were diagnosed with ls? Ive had 2 biopsies and both showed chronic inflamation.i dont have any of the typical white areas.im living in ireland and finding it hard to find treatment i am probally going to have to try get to see someone in england at this stage.im feelin sick in my stomach from the constant burning

Hi Catts123,

im in a bit of a unique situation. I'm British but live in the Middle East. I had a hysterectomy 3 years ago (today!) and after it I started with this pain/ itch. I complained to that doc who di the hysterectomy for a year or two on deaf ears. I also have a doc in the government system here and they said they couldn't see anything. I went to UK and met with a gone who was unpleasant to say the least about my issues and told me it was all on my head, Eventually last Christmas I told the private guy in ME to do a colposcopy on my vulva and made him leave the iodine in for 5 minutes. Three spots came up with a mix of results but one said LS others chronic inflammation. When you out the results with the atrophy it all adds up.

interesting that in the site where the pain was it did not show on colposcopy. So I followed up in ME and then again in UK with a vulva dermatologist.

my tactic is to see the dermatologist/gyne in UK/ME every 3 months to keep an eye, as far as they are concerned they see me each every 6 months.

ive found relief for the first time in 10 months this last week with Emuaid. When I say relief I mean for LS. The White patches have gone, the itch (irritation) all I have is the vulvodynia pain.

im booked in for the Mona Lisa Touch next week plus PRP so if this doesn't help the vulvodynia then I'll look for a new solution.

 

Hi samantha

i really hope u find some relief in all this.u are in a unique situation and it must be hard goin between the 2 countries.i have heard and read a little myself about the mona lisa touch.i had prp done earlier this yr but i dont know if it helped cause im still burning and i dont know if its from the vulvodynia or ls.my doc has me back on lyrica and amitriptyline and has referred me to a pain specialist.im hoping to maybe get to london to see a vulva specialist who can 100percent confirm both conditions.i wish u all the best and if possible i would love to know how u get on after havin the mona lisa touch.xx

Hi Catts,

I'll keep you updated thanks! Interestingly enough for me when I had the colposcopy check on the vulva the area which the pain came from did not turn white, it was other areas which showed up white and then confirmed by biopsy as LS.

Im wondering for me if the site of the pain is from the batholin gland on one side as its close and I feel a small pea sized lump when I have the pain.

Im in with the gyne on Sunday and will ask her. I'll also ask the dermatologist his opinion on Tuesday.

is it a vulva dermatologist your looking to see in London?

xx

 

Hi samantha

that would be great thanks so much.thats interesting alright i hope the gynea can tell u why that happened when u had the colposcopy. i find all this so confusing myself and sometimes think that even the specialists done know for sure cause ive been told by the gynea i didnt have vulvodynia but the dermotologist said i do.id love to have one specialist who can give me a proper diagnosis thats why im hoping to maybe find one in london.xx

Hi Samantha before you consider having a surgery please check dr. Fowler' s website. He is the best dr. in Phoenix Arizona. I suffered from vulvodynia for about 10 years. He is an angel sent from heaven. I no longer suffer from the painful burning and irritation. You have to follow his protocol. I had doubts before making my appointment but now I live a happy life.

Hi Zuzeth,

Thanks, I'm in the UK so no chance to see someone in Arizona. Would you be able to share his treatment protocol? For me I haven't had a fare for a month or so, it seems to come and go.

cheers, Samantha

Look up Vulvar vestibulitis. Apparently we are allergic to something and have to find out what it is.