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Tongue and mouth tingling

Posted , 9 users are following.

ellen40911
ellen40911

I am currently on 5 mg of prednisone down from a high of 20 in September and have developed a strange sensation in my mouth in particular tongue and lips. It is similar to a burnt tongue. I am assuming a side effect of the prednisone. Anyone else experience this? If so did it pass or was treatment of some sort required. I am on day 2 of this symptom.

0 likes, 7 replies

7 Replies

  • iellen32
    iellen32 ellen40911

    Posted

    Hi ellen I am too on Pred I do not have this symptom of yours though.

    As I know some patients do have it I am sure you will get here the answer you need .

    Hope it will be easy to fix changing the amount of Pred you are taking.

    Never loose your hope!

    Wish you all the very best in the New Year!

    xxxx

  • mphooey
    mphooey ellen40911

    Posted

    I did have this phenomenon and I asked my dentist about it. He thought it might be a side effect of the PMR. He didn'r mention anything about the pred. He recommended I use a mouth rinse for dry mouth. Another side effect of PMR I am told is secondary Sjogrens. I have had dry mouth and dry eyes for some time.
  • Ardern
    Ardern ellen40911

    Posted

    Hi I have been on preds since the beening of Nov started at 60 now down to 20. I have had that experence since the begining. Do only thing now is that my palate is push outwards against my teeth. My dentist assurrse me that it ins't

     

  • LayneTX
    LayneTX ellen40911

    Posted

    Oh my Ellen,  yes I have had this for months now, I even lost my taste for quite a while. Now most of taste is back though occassionally things will tatse bad.

    I didn't know I had dry mouth until dentist told me. I must brush 2-3 times a day and try to last for 3 minutes. I use dry mouth toothpaste.

    sometimes I get that tingling.  I have raw tongue often. 

    Doctors  said it was from mild or silent acid reflux caused by prednisone. I had endoscopy and had ENT scope my throat to determine. 

    It really sucks.  I'm struggling with it.

    I've been tested for Sjogrens, even did biopsy, I assumed my tingling lips were from biopsy, but if you have that too then maybe not.

    I stay away from acid foods.  I sometimes try red wine, but regret it later as tongue gets pretty raw.  Losing my taste was the hardest.  I tried lemon and apple cider vinegar, but that made raw tongue and throat more irritated. 

    I had thrush for a few weeks, swollen, red gums too.  

    Im on Pred 6 mg now. 

     

  • margaret22251
    margaret22251 ellen40911

    Posted

    yes Ellen, i have had this at 7.5mg as i have to be weaned off pred as they are not sure if i have pmr or not, but it went away on its own after 3 weeks, so good luck.
    • iellen32
      iellen32 margaret22251

      Posted

      Oh, Margaret so glad I am after reading your post bringing back so good news!!!

      You are really blessed for your positive outcome!

      xxxx

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