Posted , 15 users are following.
I've just been diagnosed after having standing MRI for a completely different reason for a personal injury lawsuit....I would like to talk to anyone diagnosed in later life...I'm 48...,freaking out here...
1 like, 28 replies
jvjng898 christinejava
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had my first neuro surgeon appointment last week
b2wc97455 jvjng898
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kenya13914 jvjng898
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Hi I'm 43 and I have seen my Nero surgeon twice. I m taking med. for vertigo and migraines. I'm going to see a eye nose and throat doctor in a week.
Dizzyjct christinejava
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Emis Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.
http://patient.uservoice.com/knowledgebase/articles/398331-private-messages
b2wc97455 Dizzyjct
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Dizzyjct b2wc97455
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b2wc97455 Dizzyjct
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hannah70156 Dizzyjct
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Dizzyjct hannah70156
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sarah18145 Dizzyjct
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I have just found out last week that I have Chiari after been taken into hospital with passing out, dizziness and numbness on the left hand side of my face, ear and neck. I was taken into York Hospital who decided to do a ct scan to check I hadn't had a stroke, it came back I hadn't but the junior doctor said I had Chiari but they weren't even going to tell me about it as its very normal and nothing to worry about and put my symptoms down to a migraine! It's only once I got home and researched it that I realised what he said was a load of rubbish and the symptoms I've been having for the last month could indeed be from Chiari. I just wanted to let you know that I have found a neurosurgeon at Sheffield Hallamshire called Mr Thomas Carroll who specialises in Chiari so that is a little closer to Leeds than Liverpool so it may be worth getting in touch.
I am yet to get any answers and still have no idea at what stage mine is or what I should or shouldn't be doing! I hope you get some help soon and please keep us updated on your progress. Good luck
karen05086 Dizzyjct
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karen05086 b2wc97455
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b2wc97455 christinejava
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Linleel christinejava
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Last time I talked to my neurologist, she prescribed Pamelor for neuralgia, steroids for inflammation and see her back in 2 months.
So my experience has not been pleasant. The doctors don't think symptoms are Chiari, the do every test in the book to rule out other diseases and they don't want to do surgery anytime soon, which is usually the way to fix Chiari.
What are they planning for you??
aimzlou Linleel
Posted
Your symptoms sound very similar to my own, can I ask you how long it took you to get the results back from your MRI?
Kind regards
Aimee
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