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Late diagnosed OI

Posted , 2 users are following.

Luesch59
Luesch59

66 fractures and counting

1 like, 3 replies

3 Replies

  • Luesch59
    Luesch59

    Posted

    5 years ago I was diagnosed with OI by the Veterans Hospitol, and it took us 4 years to figure out pain managment. When I was a kid in was told I was just clumsy when I broke a bone. In the military I shattered a finger and my skull at the eye socket to my upper jaw. No one put 2 and 2 together for OI. I am currently at 66 fractures and counting and my bone density is getting worse each month. The doctors said it from exposure to depleted Uranium while I was in service. My problems didn't become life altering until I was 40. The pain began so strong and overwelming, after more tests it was said my bones are not healing anymore. Every finger is fractured and held by a equivalent to Elmer glue. I am currently on Morphine and Feytnal for pain control but it doesn't help much. It also took me 3 years fighting for disability to finally win and of course the payments are not even enough to pay rent. My wife and I have reached out to OI groups but they said they only help children. I'm not trying to get simpathy, I'm just fustrated.
    • hope4cure
      hope4cure Luesch59

      Posted

      I can certainly understand your frustration. That is sinful the VA was so negligent regarding your diagnosis. Have you checked online for people with this disease. After all you served your country and this was the result. There should be better treatment from the VA . Write ur congressman and bitch till the cows come home. I am so sick of the VA treating our be vetrans in some cases so poory!.

      thank you for your service. I pray you will find all that you need to sustain you thru this journey.

      peace & heeling

      HOPE4CURE

  • hope4cure
    hope4cure Luesch59

    Posted

    So sorry that it has taken so long to get a correct diagnsis. Sounds like you can now get treatment.

    Hope 

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