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Peripheral neuropathic pain, sometimes unbearable

Posted , 18 users are following.

chrisphayao
chrisphayao

Hello,

I suffer from increasing nerve pain, started from the big toes in both

feet, then during 5 years spread unto lower legs and even started

in the hands now. It is the "tight sock" feeling constantly plus

needle feeling and electric shocks sometimes.

Only Tramol plus Gaba gives some relief, but i maxed out on this

medications.

Can anybody recommend other drugs or supplements ?

Thank you, Chris

0 likes, 50 replies

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  • MarieAzzi84
    MarieAzzi84 chrisphayao

    Posted

    I'm waiting for my go to ring me I've tried so many different meds getting fed up now as pain is so severe I can't even sleep will let u know how I get on best wishes

    • chrisphayao
      chrisphayao MarieAzzi84

      Posted

      Hi Marie,

      yes thats exactly my feeling - i get tired to try many different

      meds and treatments, I'm trying acupuncture now, until now no effect.

      I recommend to you to try antihistamine for sleeping.

      Also massive amounts of Vit. B complex and Vit. C ( i use about 3 g

      of Vit. C each day) - has no immediate effect but longterm i got the feeling it reliefs

      the general condition.

      For the pain, Tramol plus gabapentin / pregabalin works for me,

      please try to convince your doc to prescribe. Tramol can be

      critical for some ppl, it causes constipation and loss of

      appatite (what is good in my case, i lost 8 kg).

      Hope that helps you a bit, i understand your frustration and pray for you.

    • MarieAzzi84
      MarieAzzi84 chrisphayao

      Posted

      hi Chris gp has just upped my meds today still awake here with burning pain in feet upped gabapentin and prescribed tramadol not working at the mo did u say tramadol made u lose weight best wishes
    • judy11606
      judy11606 MarieAzzi84

      Posted

      I was given amatripaline to help me sleep because I hurt so much and could not sleep
    • MarieAzzi84
      MarieAzzi84 judy11606

      Posted

      hi Judy I suffer real bad I've had every tablet going I'm waiting for this tramadol to work at the moment can I ask what has happened to u hun

    • judy11606
      judy11606 MarieAzzi84

      Posted

      I have Cemo induced nurapathy I had Hodgkin lymphoma when I was 26 I am now 46 my legs have been real bad last two years like you they have tried everything to help I take norco for psi it helps now that I take them four times a day
    • judy11606
      judy11606

      Posted

      I Ment when I was 16 I have burning and stabbing pains I I have places that are getting numb I stumble sometimes this stuff is awful
    • chrisphayao
      chrisphayao MarieAzzi84

      Posted

      Hi Marie,

      It's strange that Tamol doesn't work for you - it's the only painkiller that i have discovered  until now. I take about 6 to 10 tabs (50mg) per day, so it's quite maxed out. 

      Gabapentin does work for you ?  If also not, then you are probably in desperate need of a painkiller. Doctors are unfortunately reluctant to prescibe hard stuff like Vicodine or Morphine, but i guess that's exactly what could be very helpful. Please let me know when you can find an improvement.

      Chris

    • MarieAzzi84
      MarieAzzi84 chrisphayao

      Posted

      I'm on 600mg gabapentin 3xdaily now tramadol to sleep and duluxetine sleeping a little better but would love a full nights sleep

  • liz61359
    liz61359 chrisphayao

    Posted

    I have Autonomic Polyneuropathy. I had an below knee amputation, also on my right foot, I only have a half foot. Even though they are gone, I still suffer from the pain and burning. It's in my hands and arms, back and breasts as well. I was on neurontin, but gained weight. I now take lyrica and oxcycontin, dilauded. An anti depressant, and roprinerol for restless legs. Not from diabetes. I have a cluster of auto immune diseases, and had a bone infection that resulted in the amputations. Through the years, I've been on many meds. Basically trial and error! I'm a 52 years old female smile

    • chrisphayao
      chrisphayao liz61359

      Posted

      Hi Liz,

      wow your symptoms look even more severe than mine.

      I understand you went through a lot of pain and troubles.

      That makes me a bit more humble - i also pondered sometimes

      if this neuropathy could be an autoimmune disease.

      That would need trearment with alfa interferon - but my doc

      doesnt agree, so i didnt get it prescribed.

      So i wish you also success and pray for you.

    • liz61359
      liz61359 chrisphayao

      Posted

      Hi Chris, I have taken interferon. Through the 16 years Ive had PN, Ive tried almost every combination of drugs out there. At least most of the time, the zappers (electric shocks!) have been reduced greatly. I take 150 mg Lyrica 3x a day, as well as my other meds. Im waiting patiently for cooler, less humid weather! I also have RA, and when the barometric pressure goes crazy, so does my pain!

      Hope you have a great day! My Son lived in Thailand for awhile, as well as South Korea, teaching English smile

    • chrisphayao
      chrisphayao liz61359

      Posted

      Hello Liz,

      yes, I switched from gaba to Lyrica (generic copy) and i feel better - gaba caused acid stomach for me. 

      In addition I tried mild electro therapy, using a small machine from ebay.

      I recommend you to try that out - when i used the shoes with electrodes and use electric massage ("press" - "vibrate" - "thumb" ) for 15 mins per day. It seemed to help me and i could reduce Tramol.

      And here is the same also - in Thailand it's very humid and i can hardly survive outside, but its still better than in my original country (Germany)

      Greetings !

      Emis Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.

      http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

    • liz61359
      liz61359 chrisphayao

      Posted

      Hi Chris, if it's the tens unit that you are talking about, I have one. Helps my chronic back problems smile

    • peter41791
      peter41791 liz61359

      Posted

      i am taking the max on gabap and i gained 20 lbs my doctor told me it's not one of the side effects. did you get off the drug and did you loose the weight you gained? 

    • eleni73409
      eleni73409 liz61359

      Posted

      Could u explain interferon dose shot?

      I'm not that familiar with interferon

      In what way did it help?

      The shocks. Was that the electrical stimulation? Who does that?

      In the breast I have that I can't take it

      Should I accept this will never go away? Sorry this is all. New in the upper body and it makes the lower body seem like nothing

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