Posted , 6 users are following.
Hello all, so after about a year of dealing with the symptoms(unable to swallow, rapid weight loss, dehydration, kidney levels out of wack, food coming back up etc) and being wrongly diagnosed with acid reflux by doctors. I finally was rushed to GEORGETOWN hospital in DC after passing out at work from dehydration. There I got diagnosed after a endoscopy and barium swallow test was done. I was informed that due to my age(33) and bodybuild (athletic) the best option is a H.M surgery. This was very sad news to me. I workout and play BASKETBALL everyday! The idea of cutting into my abdomen and being down for 8 weeks is scary. I later found out a old friend has Achlasia as well and he did the Ballon dialtions. He said after each visit he could eat within hours of leaving the doc office. first two times it was every 6mnths, then he didn't need one till a year later, then another year later, now it's been several years since he's been back for a dialtion and he's eating drinking fine (we used to hoop together in highschool on thru to our early 20s he was the same size and build as me to a T. He doesn't play anymore and now.... well let's just say by looking at his body it's clear he has had NO PROBLEMS keeping food down lol). I don't want to get evasive surgery if I don't absolutely need to and cutting into my muscle wall would leave open to hernias I believe, especially given how much I workout. But I do want something done I can't continue to live not being able to eat or even drink water at times without it coming back up. I am struggling with the decision should I get the dialtion or H.M?? My time is winding down till the date the docs set my H.M for what should I do?
0 likes, 8 replies
Angrybunny Vada
Posted
HI, I am on the waiting list for a heller myotomy with fundoplication as well. I had my own concerns too, but I rang the doctor and asked loads of questions first. If you are worried about hernias, ask your surgion about it, it might not be a problem at all. It's keyhole surgery, so it should heal just fine. There is a woman who body builds and does competitions who had the hellers with no problem. If you would prefer to try balloon dilation there is nothing stopping you. But expressing your concerns to your doctor may put you at ease.
Vada Angrybunny
Posted
ducky1 Vada
Posted
I had my hellers myotomy and fundoplication 4 years ago
and have no problems.
yes I still have to drink loads of water to make things go down
and have to avoid certain food but things are so much better.
My surgeon told me that dilations are no longer performed
unless you are elderly or can't have surgery.
He has told me that each dilation can damage the lining of
the oesophagus and eventually cause a rupture so is regarded
as too risky.
I had it done twice many years ago and neither lasted very long
and I was lucky as he said if I had had it done too many times
the oesophagus would be too damaged for surgery.
You really need to think it through thoroughly if you go for the
dilation as surgery may not be an option later.
Vada ducky1
Posted
Wow, that's scary ...... this is a tuff decision smh
Vada ducky1
Posted
vix22 Vada
Posted
Hi, my husband's story is very similar to ducky1, he had 2 balloon dilations that didn't last very long, then finally had the H.M & F a couple of years ago, it was life changing for him, he has now put on most of the weight he lost and lives a relatively normal life, just needs lots of water with meals and still needs to steer clear of some stodgy foods. I'm sure he was fully fit about a month after the operation. It was the best thing he did, for info; he's in his 40's.
Vada vix22
Posted
ed95295 Vada
Posted
I was diagnosed 3 years ago and asked if there was any reason to do surgery then instead of later. I was told there is no reason I couldn't wait as people much older than me have had the surgery. Unfortunately, they didn't point out the fact my esophagus could get stretched which would reduce effectiveness of treatment. Now I've had the surgery, but was told I'll have issues with food pooling in my esophagus. I'm not sure the extent of the problems, but wish I had the procedure performed sooner.
Join this discussion or start a new one?
New discussion Reply