Posted , 10 users are following.
Hi All,
My history is that I was diagnosed with PMR in April of this year after suffering for about a year prior. Placed on 15 mg prednisone and obtained a dramatic improvement. Have since reduced to 11mg where I am relatively comfortable. Started the Dead Slow method to try to reduce to 10mg and had no problem until I got to 1day 10mg 2days 11mg. (I was OK with 1day 10mg and 3 days 11mg). This has happened to me on two occasions so I am sticking with 1day 10 and 3 days 11 for a few weeks. I'm thinking the next time I should try to go from 1day 10.5 and 2 days 11.
Appreciate any thoughts on my situation.
0 likes, 14 replies
Guest rocketman42
Posted
Scott, the beauty of the Dead Slow approach to tapering is that we can stop anywhere along the way for as long as it needs to keep symptoms away. If you are flaring at a particular point it just means that that dose is a little too low to keep on top of the inflammation at the time. You are wise to stick at the 1 day at 10 and 3 days at 11 for another few weeks, or however long you need, following which your suggestion of trying just a 0.5mg reduction may prove more successful next time around - with any luck your body won't notice the tiny reduction taking place. The 10mg point does prove to be a sticking point for many. Another oft tricky dose from which to reduce is 5mg - that is the point at which I had to continue in 0.5mg decrements. Good luck next time around!
rocketman42 Guest
Posted
Guest rocketman42
Posted
joey_12298 rocketman42
Posted
Thank you!
EileenH joey_12298
Posted
It is always available in this post on the "front page" of the forum:
https://patient.info/forums/discuss/pmr-gca-website-addresses-and-resources-35316
You'll find it in the replies part of the thread.
Anhaga EileenH
Posted
EileenH Anhaga
Posted
That link takes you to the PMR-GCA website addresses and resources post/thread - it is a different link for the front page of the forum:
https://patient.info/forums/discuss/browse/polymyalgia-rheumatica-and-gca-1708
Anhaga EileenH
Posted
Told you I was thick. Never scrolled down far enough past all those addresses.
However one can also google patient dead slow nearly stop and find it.
Emis_Moderator Anhaga
Posted
Hi Anhaga/Eileen,
If it helps - the link that will take you directly to the comment with the slow method is below. We are going to change the way the useful addresses etc are displayed in future but in the meantime I can create a separate pinned discussion for the slow method if users think this would help? Let me know by PM.
https://patient.info/forums/discuss/pmr-gca-website-addresses-and-resources-35316?page=0#572395
Alan
Anhaga Emis_Moderator
Posted
Emis_Moderator Anhaga
Posted
I've created a new pinned discussion as discussed. It is here if you want to change your bookmark and/or use to pass on in other discussions.
https://patient.info/forums/discuss/reducing-pred-dead-slow-and-nearly-stop-method-531439
Regards,
Alan
EileenH rocketman42
Posted
Really always better to use the smallest step-down you can. And if you struggle - repeat the stage you have got to that works for a few times (or more).
But if it has happened a few times then it probably signals the PMR is still fairly active - stick where you are for a month or two before trying again. It isn't a race, PMR came when it wanted, it will go when it wants and the same applies to the activity of the cause. You are at the dose you need for now - it doesn't mean you won't get lower, just maybe not yet.
sharon35553 rocketman42
Posted
Hi Scotth42,
Im going through the exact same thing now, started on 15 mil of pred in Feb of this year, now at 10 mil and getting a horrible flare up but confused by this tapering method. My rheumy has me tapering by 2&1/2 mil every 4 weeks and at 12&1/2 mil I was about 90% ok now at the 10 mil Im really starting to feel the pain again in groin, neck & upper thighs. I posted for some info as to tapering the way you mentioned an waiting to hear from others here. Good luck!
Sharon
EileenH sharon35553
Posted
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