1. Community
  2. Diabetes and hormone problems
  3. Diabetes

Young children and NDI

Posted , 5 users are following.

meagan58879
meagan58879

I have a young boy that has the inherited form of nephrogenic diabetes Insipidus. He is currently 4 years old and was diagnosed at 4 months. Im looking for other parents with young children of the same age group to compare different ways this condition is treated across the country. Currently my son has been treated with a medication that is causing his kidneys to fail. Outside of the health side of things, we are getting to school age. Facing a feeding tube. Maxed doses of medication. No salt diets allergies and sensitivites. We are trying to plan school, activities and there are so many restrictions I'd like to see what other families do to manage to provide a "normal" life for their kids.

2 likes, 3 replies

3 Replies

  • clivealive
    clivealive meagan58879

    Posted

    Wow! Meagan58879 that is so hard and sad for you and your lad.

    I'm not a medically qualified person so cannot comment but I wish you well hoping that someone on here can give you advice.

  • ljubica263
    ljubica263 meagan58879

    Posted

    i have 6 years old boy with diabetes,since last year,he is going to school now and i would lie if i said that is easy,bat i am fighting....go ahead doesnt matter what happen,i am here for any conversation you want....
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.