Prolia or not to Prolia?
Posted , 5 users are following.
Long story of 2 hip replacements 2001-2006 (osteoarthritis) Right knee replacement 2008 , fractured rt femur (accident) and after 3 operations on that leg diagnosed with osteoporosis. (-2.5). I took some coated fosamex for almost 4 months and had to quit due to upper esophagus irritation (have gerd) so I have been on the fence to take Prolia. I have put it off for a year but I recently found out there is a cyst on my tibia maybe caused by particulates from the surgeries and I will need a knee replacement revision and a bone graph to fill that area. So I guess I better start this but the surgery needs to be done soon, worried about lowered immunity, infection, etc etc. side affects. Sooooo stressed out. Seeing the doc on Friday. Then need blood tests and then the injection. Surgery should be in about two months
1 like, 17 replies
elach Fyrizonly
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Fyrizonly elach
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I just came back from the specialist and he did not suggest that? What product is that? That would be great instead of the prolia I think. The Atelvia didn't work because of the gastric issues.
elach Fyrizonly
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I think there are a few different IV bisphosphonate that can be used. Why not call your doctor up and just post the question as to if there's an IV version of the medication that you have been using but could not tolerate the gastric side effects of.
Fyrizonly elach
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The only IV one I know is Reclast (once a year) and that's worse but I will ask .. Thanks 👍
kathleen65757 Fyrizonly
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I would wait to have the Prolia as there is no reason it must be done now.
I would deal with the other things first as there is no need to rush in.
As many people with osteoporosis break a bone as those who do not have osteoporosis. -2.5 is borderline anyway! My worst result is -4.3 at the base of the spine and I will not have either fosamax or Prolia.
You could, however, start on some vitamin supplements such as vitamin K2 that will put calcium onto the bones.
Magnesium is another good one as well. Check your vitamin D levels via blood tests because that alone impacts because it works with the calcium.
Foods such as avocados, kiwi fruit, prunes and bone broth help support the bones.
Stress needs to be managed because it also affects the bones as it does everything.
All the best and try not too worry toomuch!
Fyrizonly kathleen65757
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OMG.. stress... thank you for the comment. I already do all that stuff. Take really good calcium with all the above mentioned, eat avacados, prunes. Never made bone broth? I am so nervous to have my leg cut into again to fix this. How in the world would this cyct develop out of all the cases they see? Just lucky I guess. I have to get on that road to "positive" pretty quick LOL
Anhaga Fyrizonly
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Please read up on the OP meds before committing to any of them. Your bone density is not all that bad, as Kathleen says, just borderline. You also need to know that the figures for "osteopenia" and osteoporosis were fairly arbitrarily set by the WHO some years ago. These figures have been a boon to the pedlars of drugs. Some other things to think about - these did not exist as diseases in the past. All humans lose bone density as they age. We can help maintain and even improve our bone density through appropriate exercise and diet.
The major cause of fracture is falling, so the most effective thing to do is to learn how to maintain muscle strength and improve balance. Exercise like tai chi is super for that. None of the bone meds will give you stronger bones, although they may improve density reading on the machine.
Fyrizonly Anhaga
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I know but two Doctors who looked at my XRays already said I need to do something. When I had the fracture it was a non Union due to thin bones and I had to have a second surgery (bone graph) for that to start healing. My Mom has it also. I walk ride bike try to eat well. Take Calcium Vit D 2000 k2 boron etc etc. I have done this for almost two years and my leg is still week from the surgery. Have no idea how this cyst developed but it's there and has to be removed and a bone graph done in order to do the revsion before it gets loose and then I would be in big trouble 😩
Fyrizonly Anhaga
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Anhaga Fyrizonly
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I sure hope things work out for you and that you are feeling better soon. All the best!
I had what "they" decided to call a fragility fracture a couple of years ago. What really happened was I slipped on ice (my own fault, walking down a path that had caution tape across it telling people to keep out) and my leg bent sideways. I heard a crack, but thought I had sprained something. In fact at first it was thought the bone wasn't broken. It took twelve hours later and an eagle-eyed resident to spot there was something wrong, and an MRI to confirm. To this day I maintain it wasn't "fragility" but almost inevitable. In fact I was told a worse injury would have been having a torn meniscus, the bone healed more easily!
Fyrizonly Anhaga
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Lucky you. I have two torn meniscus on the other knee. One medial, the other lateral. I had planned on having that fixed arthroscopic but then this issue with the cyst came up so that has to be dealt with first 😝
Anhaga Fyrizonly
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Haha. It is pretty funny knowing a broken bone was a "better" injury! You will be quite an expert on the knee when all is said and done. Hope your recovery is good.
Fyrizonly Anhaga
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Yes, sorry didn't mean any broken bone is good. I have no idea what this will end up being but I sure hope they can fix it. Months of a walker and crutches again. Been there done that, but if they fix it I'm good. Not looking forward to having to deal with the range of motion and the pain pills 😁😁
Anhaga Fyrizonly
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I think I've described it myself as a "lucky" break. Although it might have been the straw which broke the camel's back and led to me coming down with PMR.
Fyrizonly Anhaga
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Saw the surgeon finally because this is WC and taking forever. I need a knee replacement revision but difficult because of this osteolysis that formed and now I need a specialists. Waiting for them to OK this and they have to check to make sure the bone doesnt have an infection because they cannot find a reason why the osteolysis formed. OMG if that is the case I have to be on IV antibiotics for a year with a temp inplant of some sort. Please pray this isn't the case. Its bad enough having a revision.
Anhaga Fyrizonly
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I hope you are one the mend soon. Please feel free to come on here and rant whenever you feel like it. When I first found Patient I felt I had fallen among friends!
Fyrizonly Anhaga
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well thank you I appreciate that. I have no idea what I am in for but I have spent the last three years and three operations dealing with the fractured femur from a fall at my school where I was teaching and that totally changed my life. Just when I thought things were getting "back to normal" this came up. Now I am in for a revision that is complicated and as I mentioned, praying that there is no infection in the bone. Anyone that has any experience with joint revisions and have had good outcomes please feel free to give me a heads up.