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Neuro symptons

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Mable1964
Mable1964

Am On injections every other day for forseeable future due to neuro problems

I am now walking with crutches as balance gone and specialist told me that my reflexes in knees are 4/5. However my knees still work when sat down as in I can flex them and move legs up and down but when trying to climb stairs my feet won't lift? Is this to do with knees? Reflexes? Or feet? Also is this permenant? Can your reflexes come back?

Thanks

2 likes, 7 replies

7 Replies

  • clivealive
    clivealive Mable1964

    Posted

    I am not medically qualified person but can you say more about your diagnosis?

    Your saying that you are having  "injections every other day for forseeable future" suggests that you have B12 Deficiency or P.A..  

    How long have you been having neurological symptoms and what others do you have?

    I was diagnosed with P.A. nearly 45 years ago, 13 years after I'd had gastric surgery, by which time I was a Zombie barely able to walk or climb stairs

    • Mable1964
      Mable1964 clivealive

      Posted

      Have had neuro symptons for 3 months - had loading doses but then got much worse very quickly. Have been on injections every other day for 3 weeks also take Berocca, iron and folic acid in a liquid form, b12 boost spray and a 5000mg sublingual not sure if I have Pa yet as still waiting for endoscope
    • clivealive
      clivealive Mable1964

      Posted

      It is not unknown to feel worse after treatment starts as the B112 begins to repair the damage to the mylene sheathing of the nerves.

      I've likened it to damage to the insulation on an electric cable which allows the current to leak away instead lighting up the bulb. Repair the insulation and the electricity flows properly.

      B12 repairs the mylene sheathing and all of a sudden the brain "lights up" and starts receiving messages from parts of the body it has "forgotten about" which are often translated as "pain" until the brain has time to analyse and process them.

      Sadly it's not an overnight magic cure and it will take time.  A good idea is to keep a daily diary of all your different symptoms as and when they improve.

      I still get some neurological symptoms in the run up to my next injection, notably an unsteady gait where it seems that my brain doesn't know where my feet are.  

      I'm not sure whether that's because I'm six feet four inches tall or 75 years of age biggrin

      I wish you well, don't stress too much (that uses up B12) and try to be a patient patient - things will get better.

    • Mable1964
      Mable1964 clivealive

      Posted

      Many thanks Clive much appreciated. Started hydrotherapy today and was so good to be able to walk in the water!! A real boost but draining getting out!!!
  • hope4cure
    hope4cure Mable1964

    Posted

    Ask your dr about foot drop. Could be a back nerve issue or a muscle weakness. I had it with horrible pain and numbness. After psio therapy and 6 months it was much better. I have compressed spine lower back. 

    Foot drop is a gait abnormality in which the dropping of the forefoot happens due to weakness, irritation or damage to the common fibular nerve including the sciatic nerve, or paralysis of the muscles in the anterior portion of the lower leg. It is usually a symptom of a greater problem, not a disease in itself. It is characterized by inability or impaired ability to raise the toes or raise the foot from the ankle (dorsiflexion). Foot drop may be temporary or permanent, depending on the extent of muscle weakness or paralysis and it can occur in one or both feet. In walking, the raised leg is slightly bent at the knee to prevent the foot from dragging along the ground

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