Venesection
Posted , 3 users are following.
Hi all
I'm due for my next v/section 15.9.16 ,does anyone know if I will still
Be able to have it because for several days I have had chronic pain
From sciatica in my back,hip and down my leg,I've taken CO codomol
And anti inflammatories, which gave me chronic indigestion.
Simple thing like putting my trouser's on takes 10 minutes the pain is
That bad.my last v/section level didn't drop by anything, I assume with
This my levels will not drop again this time.
Enough about me how is everyone's treatment going?????
Cheers philx
1 like, 8 replies
mike80628 philx
Posted
Hi Phil. I would Def go for the next v section, unless you don't feel you're up to it. If your ferritin levels are up at the mo cos of the inflammation, you are still removing iron with the v section and further iron will be used to make new blood, and post inflammation your levels will drop anyway. So, Def go, unless physically you're not up to it.
I'm in maintenance phase now as you know. I'm booked in for blood donating every six weeks at the mo. My level is hovering in the low twenties. In the new year, I'll probably start going every 8-10 weeks and monitor my levels..then might go for every three months. Initially in maintenance phase I think it takes a good year to see what your body is doing and how quickly the levels go up. I'm taking free tea supplements, turmeric, IP6 and calcium every day, doing my bit to chelate the iron and prevent absorption. Hardly any red meat. Loads of fish, chicken quite often, and I enjoy my beer and wine at the weekend. So, all quite a normal lifestyle really. I have the painful hand joints and limited movement in the right hand, but can't do much about that, though the turmeric is good for all that. I'm lucky it's just that, cos as we know, there could be far more serious symptoms with this Celtic Curse. Anyway, hope you feel better soon Phil. Cheers. Mike.
philx mike80628
Posted
i took onboard what you told me in my first reply from you,take it one v/section at a time whether it comes down ,goes up,or stays where it is?????
we cannot change things its our bodies that are in charge.
i drink black tea or milk with meals,use turmeric when preparing meals (even though i find it very bland)i never eat red meats or seafood.i eat a lot of quorn products,turkey mince .cut out fresh orange jucie,i am on statins for cholestorol and was told to cut out dairy foods,but ironically it seems these are the foods i now need to eat??(they will tell me soon my cholestorol is high ha ha)
i will keep my appointment thursday come what may,and if it fails to drop this week i may ask to go back to weekly???
id you ever have any problems with fluctuating hemoglobin levels mine has been as high as 162 and low as 120.i am watching this and if i goes below 120 i will ask for consultation????
cheers philx .
mike80628 philx
Posted
Hi Phil. I'd check with the Quorn products...there's a chance they may have added iron. Not sure where I heard that. I use Quorn, as great alternative to red meat..good as its virtually fat free, but a pain if there's added iron. I keep meaning to phone them to ask. As these things with added iron, it ends up being the same amount of iron as red meat! I have red meat about two or three times a month. As the Haemochromatosis Society advise, no reason why you can't eat some read meat from time to time, as diet can't really control it. One venesection get rid of about 250mg of iron. A big red steak is equal to about 2mg....so it's worth a little treat. If you have milk with the steak, even better. Needs to be calcium for meat, as tannins in tea works better on non heme iron. Anyway, keep me posted on your progress. Take care. Mike.
philx mike80628
Posted
we cannot win there is iron added to most things tapwater for one,i have always eaten hovis wholemeal it doesnt say contains iron but when i phoned them they said they do use iron in the processing of it i told them what we have,and told them if there is any iron in it it should be listed,they had no answer for me???/i think the hemochromotosis society should get onto the government for packaging to show iron content in foods for us sufferers???
i did list everthing i eat and have shown it to the hemotology consultant he said there was nothing i needed to change .
cheers keep you updated phil
sheryl37154 philx
Posted
If Quorn products are made from grains, check the level of iron in those grains - their non-heme iron is much higher than the much aligned spinach.
sheryl37154
Posted
philx sheryl37154
Posted
Hi Sheryl
I did check iron in quorn yes there is a small amount of iron in quorn
But far less than a lot of other products??.
It appears a lot of food has iron included in the process system.
But doesn't always appear on the ingredients, I am a fussy eater and
If I stopped everything where would I be,.
I only have low fat products etc
Cheers philx
sheryl37154 philx
Posted
Yeah, I wouldn't worry about the iron content - impossible to avoid and we still need it apparantly!!! UNLESS, it is added iron. But if the fungi comes from the ground, it is going to have iron in it.
Sugar and starches are the big problem.