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Simponi for PsA

Posted , 5 users are following.

annette25895
annette25895

Hi All, I  had my first injection of Simponi 2 weeks ago. Since then I have felt exhausted with no energy. Can anyone let me know how they got on with this drug? Did you feel tired? How long did it last? I can't remeber how many different drugs I've tried now and they all give me headaches or make me lethargic. I'm beginning to feel like I'm running out of options and just wan't some life back. Thanks.

0 likes, 8 replies

8 Replies

  • stephen54311
    stephen54311 annette25895

    Posted

    Hi Annette in reply yes I have been on simponi over a year and have had good results with pain and swelling but have always been very tired hopefully you will settle down in time
  • borderriever
    borderriever annette25895

    Posted

    The problem with PsA is that it effects the immune system and speeds it up, This attacks the skin and joints and causes tiredness

    The mediation you are taking will slow the attacking immune system and again we feel washed out and tired, this is power to the course and your GP and Specialist should be keeping an eye on you and they do this with blood tests on a regular basis.

    In my case I found myself having extreme contraindications, on this that did happen was my bloods showed a depletion of white blood cells. So now I just take NSIDs and Opiates.

    You have been on this medication for two weeks, try taking the drug for a longer period say six weeks to two months. Attend your blood tests and any other specialists as regular as you can so they keep an eye open how you get on

    Always around

    BOB

  • lol8
    lol8 annette25895

    Posted

    Hi, i was on this drug for 9 months, i always had pain around the injection site but put this down to me not doing it correctly, although i inject weekly with mthx and have no problems........ If i remember correctly it took awhile to kick in and help..

    I noticed after 7 moths that i started to get some funny/nasty blister type things about 2" away from the injection site, but as nobody seemed worried i carried on untill my thigh looked so sore and they started to weep so i stopped injecting it..

    That was about 4 months ago................Soooooo i maybe a one off but please continue but if you start to get red sores near the inject site i would speak to your rheumy straight away.

    I hope i haven't alarmed you, but its good to be forwarned, as nobdy told me this may happen.

    Feel free to ask me any questions.........

  • lucynewas
    lucynewas annette25895

    Posted

    There is a new drug called otezla which is a bio-simulator which is specifically for PsA.  It's hospital only prescription - but no blood tests, although my hospital are continuing to monitor mine.

    • lol8
      lol8 lucynewas

      Posted

      Hi how long have you been on this new drug? Is it tablet/injection how often do you take it. sorry for so many questions it sounds interesting..
    • lucynewas
      lucynewas lol8

      Posted

      Waiting for the prescription to be dispensed (hospital only).  It's tablets, and you have to gradually increase to the full dose - over 3 months.  PM me if you like and I'll keep you posted with my symptoms.  But worth asking about - it's only indicated in PsA.

    • annette25895
      annette25895 lucynewas

      Posted

      I've tried Otezla, didn't work for me. Caused me headaches and made me drowsy so I had to stop taking it. Hope you have good results with it.

    • lol8
      lol8 lucynewas

      Posted

      It will be good to see your progress, it's always interesting to see how the drugs act on different people.

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