Acceptance of the mighty PMR

Hallo 'Tasty' good to hear you are getting on OK.  Nice to just sit and 'accept' what can't be changed.  Life's too short - enjoy!

I too can see the upside. I could have got something much MUCH worse. I work full time and did before I was diagnosed (but left early). I am so glad I am able to work as we would have to sell our house ... I try to exercise everyday by walking and this is a plus. Ok I have put on a stone which I don't need but compared to others I am lucky. Maybe getting it early (58) makes it easier.

I too try to enjoy every minute.

It's sunny. Have a good weekend.

I've always been a glass half full person and still am though sometimes get a bit frustrated by PMR. I try not to think about how much I could do in a short time prior to PMR. I now think about how, as I can now do less in one go, it will mean less wear and tear on my body! Wishful thinking? Friends and relatives are now concerned about me though I struggle with this as I was always so robust. I can do so much more than a year ago, for which I am thankful. I am fortunate that I am retired so no financial or work concerns. However, it does concern me that you are having financial problems which is understandable as you have been off work. Are you getting all that you may be entitled to or have you been assessed for benefits? It always surprises me that people forget about insurance that they took out for sickness and sometimes they don't realise that they can claim sickness benefit even if they have private insurance. I feel you have enough stress with PMR far less worrying about finances. Have you contacted CAB or the Welfare Benefits section of your local authority?

I am with you Ron. Diagnosed in Dec 15... a bit lower on Pred. I am one of the lucky ones not to have too many side effects. PMR forced me to refocus my life and spend more "ME" time. I think I appreciate more small things in life. Still can't do press up either, but I am working on it .

I feel much the same - and every so often I suggest to people who tell me that PMR must be the worst disease ever to go across to the Lupus or the Vasculitis forums and have a read. 

I'm not sure getting it early is a help whitefishbay - I was still 51 (just) and I lost most of my 50s to PMR as it wasn't recognised. That hurt in more ways than one. It was bliss to take those 3 tablets and be able to move - but I'd lost a lot of fitness and while I did carry on skiing for a while - my winter meditation -  the primary reason for living where we do was gone. I'm just not fit enough for it to be safe.

Instead I have other pastimes and have new friends - and this summer I've met a few of them in the flesh which has been wonderful. 

We are particularly lucky - I was a freelance translator so PMR just made it more uncomfortable and I had to concentrate harder. Now I'm properly retired and hope it stays that way. I also hope we can stay here despite Brexit - because I won't get the healthcare I get here if I have to come back to the UK. Above all, I won't get Lodotra without paying for it myself and that will make a big difference I suspect.

We've just come back from Lake Garda to interject a bit of work (editors for a Proceedings which paid for one of our trips this summer) but will wander off again on Monday probably. It's late summer by most people's standards, autumnal by ours now - mid-20sC and sunny. Long may it stay that way!!!!

Happy weekend all!

Yep. Life is definately too short. We had a couple of bad years. My wife's mother died of cancer in the face in Feb '2012, brought on quickly by the anti rejection drugs for a long term kidney transplant. 4 months later, my mother died of liver cancer, from diagnosis to dying in about 3 months. 12 months after that my wife found her stepfather dead on the sofa, had made himself a cup of coffee, sat down with his hands in his lap and died peacefully, nice way to go. A year later my Dad died of Pancreatanisis,(sp?). A really nasty time, no wonder this stress brought our little friend into my life.

Anyhoo, I could easily have gone into some sort of depression, but sod that, I've got a great wife and a 17 year old daughter to "tend" to.

Can't change what has happened, don't know whats to come, the only thing I can do anything about is the present and I ain't gonna waste it worrying.

Ron

Your positive thinking got here at the right moment.

Yes, I am happy because I am able to see!

I hope this GCA will not affect the precious gift of vision!

In same time I exercise physically, I exercise my mind to think correctly, I mean, on being able to see what I want it to happen.

I feel joy with the expectation of a happy outcome!

You stay well, Tastiron! 😀

Ditto Tastyron.

I too am learning so much about my self, life, ... Thanks to my Bowen gal who has opened my eyes to much more in the Universe. Amazing how our early lives created our thinking and so much of it was negative, though I thought I was a fairly positive and open being, but my goodness, now I see how much I took into my body, and how much I limited myself.  I think the PMR said STOP what you are doing. Boy did it. (I'd like to use exclamation marks, but I got moderated once for that, ugh)

Now I'm learning how much beauty we really are and how feeling energetically well is so much better than me trying to solve my health issues with logic, medicines, foods.  Believing in things is really key... 

I can now stop and laugh and be thankful. But I do want to be able to eat yummy foods like spices, tomatoes, peppers, cheese, wine, beer, ... Soon, I will. I see now... happiness is not the foods I take in. 😘