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Recurrent TGN pain

Posted , 4 users are following.

subhash31449
subhash31449

I had MVD surgery 2 years ago & was pain free till last winter when pain came back and painful episod lasted for days and were a lot more severe than before .

restarted Lamotrigine . MRI scan showed MVD still intact so consultant suggested start reducing the dose but pain returned after a slight reduction . Any one else in similar situation ?

0 likes, 3 replies

3 Replies

  • army183
    army183 subhash31449

    Posted

    Oh no! How disappointing - you have much sympathy from us all

    One quick (maybe a bit dumb) question. I was thinking about you while I was driving home!

    Did you have a Teflon sponge inserted or did they re-route your artery? It might be that there has been some infiltration of cells into the sponge and it has become a bit "hard" and it is now a new source of pressure on your nerve. Do you think that's possible?

    Keep safe

    Big D

    • subhash31449
      subhash31449 army183

      Posted

      Yes it was teflon they inserted , but consultant thinks compression is intact . I had go back on medication . After the second MRI , consultant reccomnded I reduce the dose and which I did gradulally per month . But after 4 momths symptoms came back . Now he is saying yes increase the dose gradually again . Thanks for your sympathy,

       

  • alicot
    alicot subhash31449

    Posted

    I have heard of this recurrent theme happenin a plenty with all procedures. Mine came back three times. I just get another surgery until the next time.  I do Radiofrequency surgery which is minimal pain and quick to end pain..until the next time. We just have to have a TN team available to us for, I guess the rest of our lives or until we find a real solution to nerve pain.

    Soldiers come home with horrid nerve pain issues often and are in and out of pain, like many of us, for the rest.of their lives. I know one of these guys who was in ww II.  The nerve pain was in his leg.

     

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