Negative Dysphotopsia Unsuccessful Cataract surgery
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I hate it! These unwanted images are driving me crazy! You've got to do something about this.the reality is that dysphotopsia has become the number one problem following uncomplicated, successful cataract surgery. And it doesn't go away easily once a patient becomes focused on it. In my experience, if a patient has perceived this as a major problem for three months or more, it won't improve without intervention.
Unfortunately, many of these patients are incredibly unhappy. Quite a few end up in my office after seeing five or six other doctors, most of whom have told the patients that they're crazy. "Your surgery is perfect," they say. "There's nothing wrong here." This has entirely the wrong effect, making the patient angrier and even more focused on the unwanted images.
the number of patients who actually require an intraocular lens exchange because of dysphotopsia is only about one in a thousand. However, the number of patients complaining about dysphotopsia is closer to one in ten. It's also worth noting that the percentage of patients complaining depends upon whether you ask them about this problem. A lot of people are unhappy; they just don't say anything to the doctor. (This is not a good thing.)
1 like, 15 replies
ruth02558 cuz4concern
Posted
I read this article months ago. I began having problems 3 mo after surgery. Eyesight cloudy, then bright glare left eye. Saw surgeon 5 mo after surgeries, lens is "perfect". By this time, couldn't read eye chart with left eye. His suggestion was neuro opthamologist. Going outside was unbearable due to bright artifacts from lens edge, reading using left eye no longer possible. Started negative dysphotopsias. So 3 retinal specialists, 2 neuro opthamologist psych, 5 opthamologist and hundreds of dollars later, itrace screen showed significant corneal and lens irregularities. ALL testing was normal except I can't read eye chart or drive safely on a bright day. My cataracts were only slightly visually a problem. I have 2 eyes grossly abnormal. As I look out at the world, I see my lenses, perfect rings that shimmer CONSTANTLY. At one year post IOL implant, I will have my left lens exchanged. My eyesight from left eye is impossible as I lead my life. Surgeon suspects Glistenings, which are common with acrylic lenses. I risk tearing of the lens capsule, etc, even loss of my eyesight. One DOES NOT neuro adapt to lenses with too high an index of refraction. Very thin lenses are highly reflective do to thinness and flatness, which acts like a mirror. Perfect surgical placement is a poor substitute for aberrant images and physical and visual discomfort.
cuz4concern ruth02558
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They call it the perfect storm!! untill more people complaint about it doctors are just going to give excuses.
cuz4concern
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ruth02558 cuz4concern
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4carrie cuz4concern
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I am one of these patients you speak of with dysphotopsia. I am an educated thirty- five year old audiologist with a doctorate degree. I have a huge family history of cataracts at a young age and I have had cataract surgery in June and July 2015. I continued to have problems after to first eye with light and honestly vision was a struggle but he told me this was all normal. He convinced me to proceed with surgery on the second eye but this did not seem to help with the halos and glare especially at night. I would drive but struggled as if the cataracts were still there. In April 2016 after a lot of complaining of glare, my doctor stating I need the Yag procedure in my left eye to clear up the cloudy film that he felt was causing the glare again. I felt like it made some sense maybe him was right and unfornately this is when I made a huge mistake trusting my doctor. I now cannot drive at night due to starburst and headaches to the brightness. I have seen four other eye specialists who all disagree and have suggest anxiety meds for my troubles. I don't feel like anyone has any answers and I have no more money to extend to them. I am disappointed in any decisions I have made which should have been a easy surgery as all say. The diagnosis I have give myself has been due to my research and not any of the five eye specialist I have seen. My question is if others come to you for this problem what do you suggest? Is there anything you could do for me?
cuz4concern 4carrie
Posted
I am so sorry to hear about what happen.
My email to my doctor my first night after surgery
Cataract surgery post-op: shadow at edge of visual field
I had cataract surgery on my left eye a on July 27 2016. The night after the surgery, I noticed a dark area at the extreme left edge of my visual field. It looked as though there was an object obstructing the light hovering to the left of my eye. moves when I look around. I also experienced disturbing bright flashes of light that seemed to coincide with eye movement. I reported both phenomena to my surgeon at that time. He said the flashing is "normal",
The flashes have almost gone away; however the "dark shadow is still there. This is really little more than an annoyance--the amount of my visual field that's occluded is trifling.
But I'm concerned that this might be more than just a trivial and temporary phenomenon--I'm not convinced . I'm thinking the IOL may not be placed correctly, or that something else has gone wrong.
And now can see my pulse in that eye (no joke). This manifests itself as a bunch of string like lines across the field of vision flashing on and off with the rhythm of my heart
I am concern I may Negative Dysphotopsia
cuz4concern
Edited
Dirty little tricks
Wait and see
A deception that cataract surgeon present to patients with post cataract surgery problems is to tell them to wait a minimum of six months to a year to see if the problem will go away through patient accommodation. Surgeons may also tell patients that research shows that their problem will likely disappear over time.
What the surgeons are actually telling patients is that they don't or can't fix the problem and that they hope that patients will ignore the problem over time.
Another advantage that surgeons receive by using the wait and see approach is that their patients will likely not come back to them. Cataract patients tend to be old. If the surgeon is lucky, the patient will die from other old age complications before complaining about their continued post cataract surgery side effects. Even if the patient doesn't die, they will likely have some other life threatening age-related health issue that will take priority over partially obscured eyesight.
ruth02558 cuz4concern
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ruth02558 cuz4concern
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GretaGarbo cuz4concern
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I may have the same problem. I had my surgery last week. Yesterday, I told the doctor I can barely see through my left eye. I have a giant white cloud I look through and lights look like sparklers. The doctor told me to just adjust my TV since I had probably adjusted the color to suit my cataract. I wante to scream, but instead I covered my left eye and told him the color of everything in the room and then covered my right eye and told him about the washed out distorted colors and giant red starburst spots. He just said, "Oh" and said I might have had a stroke in my eye. I think I just had the wrong surgeon.
ruth02558 GretaGarbo
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Positive dysphotopsias can include veiling glare. Mine started like dirty fog but has become that bright cloud. Light fixture in family room as I look from kitchen is almost completely hidden by the bright.cloud..no sparklers. This was not there originally, just the dirty haze. By 4 mo, I could no longer read the eye chart with that eye. Please look up dysphotopsias, they are common and varied. Good luck
GretaGarbo ruth02558
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I went back to my doctor and told him how messed up my vision is with the gaint white cloud, sensitivity to light (sparklers, etc.), and words missing from pages when I try to read. I need to drive in my job and cannot put off going back to work. This time the doctor told me to just put a patch over that eye and drive. I asked him if he had ever driven with one eye and he said, "No". I have a friend who went blind in one eye and I know how hard it is to learn to drive like that. I can't believe he said that to me. A relative says that they can't redo the cataract surgery after 4 weeks. Has anyone ever heard if that is true?
cuz4concern GretaGarbo
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darren07043 cuz4concern
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I was scheduled for cataract surgery on April 4 (right eye) and April 18 (left eye). Two days after the surgery on my right eye, I woke up seeing the edge of the lens along the right side of my field of vision. My vision in that eye is greatly improved, but seeing the edge of the lens is extremely annoying. I immediately called my surgeon's office and spoke to a member of his surgical team. I was told that I WAS seeing the edge of the lens, that this was normal, that it takes a few days for the lens to settle into place and that it would clear up in a few days. It has now been two and a half weeks and no improvement. I canceled the surgery on my left eye until I see how things develop with my right eye. I have an appointment with the surgeon on Tuesday, but I expect him to insist again that it's normal and give it more time. I've also made an appointment with a different surgeon for a second opinion, but it will take at least three months to get in to see him because I am classified as a new patient. What advice can you give me going forward?
RonAKA darren07043
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I think it is never a good idea to do cataract surgery with less than a 6 week interval between eyes. It is always best to see what you got from the first eye before diving in to do the second eye.
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I think you are doing the right thing by holding off on the second surgery until the issues are resolved with the first eye. It is not normal to see the edge of the lens. How old are you? Younger people will have a larger pupil and can be more likely to have a lens that is too small. It is also a good idea to get a second opinion. If the lens is off center, it really should be adjusted. I don't think it is normal to expect it to get to centre by itself.
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If you are not having issues with dealing with one eye done and the other not, I would not be in any rush to do the second eye. I went about 1.5 years between eyes.