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Seeking a specialist in Neuropathy

Posted , 3 users are following.

derek76
derek76

I don't have Neuropathic Pain just numbness and need to see a neurologist who specialises in Neuropathy. Does anyone know of one in the Sussex area? I am told that the main UK centre for this specialty is in Bristol.

I have been to a general neurologist and was then referred to a neurosurgeon as the neurologist thought it more suited to a surgeon after seeing my lumbar spine CT scan.. After an MRI scan the neurosurgeon thought it more a problem for a specialist in neuropathy.

I live in Sussex and it was thought that there was a specialist in Brighton but they did not have one. Brighton suggested one who consults at Kings College in London and privately at London Bridge hospital. Travel to either would be a bit difficult for me. I then found that he consulted in Kent at Maidstone NHS Hospital one morning a week and at a private one in Sevenoaks one afternoon a week. It would be very difficult to get to Maidstone in time by train so I elected for Sevenoaks.

Now the clinics are be rearranged and Sevenoaks with now be in the morning starting at 8am so I'm looking for an alternave location if anyone knows of such a specialist.

 

0 likes, 6 replies

6 Replies

  • vicky89033
    vicky89033 derek76

    Posted

    hiya derek, i know i moaned about having to travel/stay at queens square london but it is the best the consultation was 90mins long and test arranged within 7 weeks for the NHS that is so good. i used patient transport to travel there this can be arranged by your local hospital or GP if your struggling to travel there. if i can do it so can you good luck-vicky
    • derek76
      derek76 vicky89033

      Posted

      I'll ask my doctor if they cover the investigations I need. Queens Square would be quite easy to get to. Train to Victoria and bus or taxi.

    • vicky89033
      vicky89033 derek76

      Posted

      Im sure there was a tube station very near to it.im sure they test all nuero conditions the autonomic unit was very good and while i was there patients were there having scans,nerve conduction test and indepth neuropathy testing
    • derek76
      derek76 vicky89033

      Posted

      We use busses in London as we can use our bus passes and the Tube stations involve lot of walking and escalators. In a crowd it is difficult to step off escalators.

      I have already been tested for every neurological condition including hereditary ones that is why we are looking for someone who specialises in a narrower area.     

  • marie16426
    marie16426 derek76

    Posted

    Hi derek maybe keep 8am appt n just find hotel near clinic the previous night... good luck with your appt... sorry i cant be of any help as im in ireland....
    • derek76
      derek76 marie16426

      Posted

      His secretary is going to phone me tomorrow perhaps we can find a means of being fitted in before he switches times and locations. It is not a very big town and hotels nearby are rather limited and expensive, Even staying overnight means getting up early in the morning and probably missing breakfast! I had one appointmet once in London when they wanted to fasting blood tests and gave me a noon appointment. I made my hotel breakfast into sandwiches to take with me. 
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