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I have hsp, how do you stay positive, sometimes I feel like giving up.

Posted , 4 users are following.

ashley54114
ashley54114

I was diagnosed in November of last year, my kidneys failed in december, now I have to do dylasis 3x a week plus getting sick all the time, I'm on alot of different meds, imuran and prednisone... I have bad flares on my legs and feet, and really bad belly pain, seems like it's never gonna go away... feeling very hopeless, just stopped my life, just wanna be normal again

0 likes, 6 replies

6 Replies

  • Cinders68
    Cinders68 ashley54114

    Posted

    Hi Ashley so sorry your having such a bad time. My daughter developed this last September and we found the tummy pain and vomiting due to yeast and yeast extract!. The docs are clueless and prescribe meds on a trial and error basis. We stay positive as the alternative really is bleak. Try and surround yourself with people who have a happy disposition. Try to remember each day is a new day. Sorry this site doesn't allow people to physically talk to each other, but Im working on it. Keep searching HSP info and hopefully you will reach our site in the coming months. In the meantime wishing you all the best 😀

    • ashley54114
      ashley54114 Cinders68

      Posted

      Thank you so much, I try to stay positive but it is really hard sometimes... when you don't have many friends and a companion it gets really hard..

  • lucynewas
    lucynewas ashley54114

    Posted

    Where are you in the world?
    • lucynewas
      lucynewas ashley54114

      Posted

      OK. It's worth looking into some of the medical research programmes. They're more available in the US. Also, there's no harm in trying rosehip (anti inflammatory) and probiotics (restore digestive balance).

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