Posted , 3 users are following.
Can someone told me that there was pain in or near the transplanted kidney I have three months and I think that I am in pain.
This usually lasts less when I'm resting I can for listening
0 likes, 12 replies
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helen54849 nani65405
Posted
Your post is really hard to understand, I am not sure what you are trying to ask? If you have a transplant and you ever get pain in or around it you need to go and have the doctors investigate it. Never ignore it or you could loose your transplanted kidney. I hope this is what you were asking.
nani65405 helen54849
Posted
you will thank you understand exactly on Monday visited the doctor is supposed to know if anyone has had this problem.
eric31962 helen54849
Posted
helen54849 eric31962
Posted
Thank you Eric that is very kind of you to say, all of us struggle on here and it can be scary for people. I have had my transplant and was doing well untill they upped the dose on one of my anti rejection drugs and my creatinine is on the rise and they wont have it that it is that drug. I have had scans nothing on them my new kidney its doing brill my hb levels and iron are fab my output is fab so they don't know what it is so to be on the safe sie I am having the obligitory three days worth of stong steriods can I ask you what to expect as I have read that you have had tis treatment so it would be nice to have some advise from someone experienced if you dont mind x
eric31962 helen54849
Posted
Dear Helen, Sorry I didn't know you had a transplant! I've seen you write and support other patients and that's what I was commenting/thinking of. I had 80mgs of Prednisolone (maximum dose) For around six months and then weaned off for a year or so. But there are other drugs that may be prescribed that do very much the same job.The side effects were not good, BUT it worked, and the medical team became quite alarmed by my sandwich consumption in the dialysis unit! (None left for them) With some reservations I'm happy to go along with medical opinion and feel that in general hospitals do a pretty good job, whilst knowing that mistakes do take place. My creatinine levels were around the 225,mark which meant vomiting and more unpleasent symptoms! It took 16 days to get a diagnosis as the hospital I was originally admitted to, had no idea what the problem was. But then it is easy to be wise after the event !
I won't give a list possible side effects because it would do no good and might increase the stress you are under. You only have to open a packet of pills and the possible side effects are on the leaflet anyhow !
I'll be thinking of you and knowing you are a carer, and this site and the world needs you badly. Bless you with all my heart . Ex
helen54849 eric31962
Posted
Hi Eric,
It was going to be IV steriods, however I got to the hospital as instructed my drug they increased is an anti rejection drug and my blood levels are supposed to be 7 with it any higher and it is poisoning me. Any how I get to the hospital (Its an hour each way and I have been every day so far this week so my patients is a bit thin) to be told that I wasn't being booked in as my prograf blood levels are 10 (i'm being poisened grr) they want to repeat the bloods. Turns out my anti rejection drug dose is too high and I am to go back to what I was on before it all went wrong. Really I said isn't that what I have been telling you for a week and none of you would listen or write my concerns on my notes. So I nearly got given high doses of steriods for no reason when it was as simple as putting my drug dose to what it was before someone took it upon themselves to interfere. I am not happy and won't be changing anything without the say so of a consultant. It bothers me that they wouldn't even listen to me when I know me better than anyone, I knew I wasn't rejecting as I feel better than I have in years. I have trust issues with medical staff any way. They kept sending my brother away and he ended up in ICU on the verge of a diabetic coma and then my poor Dad was told he had pulled a muscle in his shoulder for four years when really he had cancer and was dead within 6 months so you can see why I struggle. Lets see how I get on now until my next bloods on Monday bet things have improved. I will get there I don't really do self pitty I am more of a suck it up kind of person as there are always people worse off. At least I had a transplant there are people who cannot be cured and so I thank my lucky stars that I have a wonderful husband who worships the ground I walk on, two lovely children and the most amazing family and friends that anyone could wish for. I have a nice home and a good employer. In the grand scheme of things what have I got to moan about, I don't have loads of money and I don't care for it anyway and I wouldn't swao what i have for all the money in the world. I am glad you are still well long may it continue. xx
eric31962 helen54849
Posted
Dear Helen54849,
I've noticed the work you do which is why I replied as I did.
Anybody can be happy in the state of comfort, ease, health, success, pleasure and joy; but if one will be happy and contented in the time of trouble, hardship and prevailing disease, it is the proof of nobility.
That was the main quality that shone out of your posts. 'Nobility'. Sorry if I sound OTT but I had good reason to write those things.
I can see why a specialist would prescribe steroids as it could reduce rejection but may also lay one open to infections by reducing resistance One can of course download an information sheet for any drug. I can't see anything to be gained by doing this.
There is a Nephological Open day at the Wales kidney research unit in Cardiff hospital on the 12/10/16. 1300 - 1700 Your obviously unwell and suspect your about 150 miles away.? But if you know anyone who may be able to attend please pass on the opportunity.
Believe me I certainally will be thinking of you . You will know much more than I will, I'm sure, but please be positive, you have so much to give.
I went on the same dialysis shift for two months and so knew the staff and patients fairly well. When they told me I didn't have to go anymore I cried for a while,(silently!) because I felt so guilty if you can understand that ? It's a really difficult life without functional kidney's and like you I have family and friends (I don't deserve them and often complain!) I visit one person I met she has a really awful life.
Bless you, and stay close to those you love. Eric xxx
eric31962 nani65405
Posted
nani65405 eric31962
Posted
eric31962 nani65405
Posted
Dear Nani 65405,
About three years ago my kidneys failed . I was taken into hospital and given large doses of steroids. My kidneys hurt like hell.
It took four months in hospital and two years to get me off steroids .
We don't worry about kidneys until they go wrong , but they are so important to our health and well - being . Please keep well. E
nani65405 eric31962
Posted
medicine in my country is not developed and I gotta go to turkey.
as they have care than doctors, only to terminate the moon spo cigarettes.
eric31962 nani65405
Posted
Dear Nani65405,
Thankyou for your question. Yes, I am better now. I've been drug free for almost a year. I take only Vitamin D and calcium suppliments and a small amount of blood pressure medication. I still see the specialist, but we are on 9, month appointments so not very often!
Hoping you will keep healthy ? E