Chemical sensitivity affecting throat/chest

Oh my, you are the first person to say the same as me.  Yes petrol is a nightmare.  We have both petrol and diesel and both kill me.  Also exhaust fumes.  And now the log fire - when will this stop.  I find people don't believe me.  Did you talk to your doc about it?

I've joined the LPR / Silent Reflux Facebook support group, and seems this has happened to other sufferers. Maybe due to acid reflux or vapours going as high up as the nostrils, and perhaps causing damage to the smell receptors. I've also had problems with the roof of my mouth and ear pain, plus sinus problems, thick mucus, hoarseness and  tightness round throat.

Sensitivity to smells is very bad for me, the worse my acid reflux symptoms are the worse it bothers me to smell things. I was in a parking lot and had to leave as I was feeling like I was going to throw up because of this, so I went on home. My sensitivity to smells is extreme. I can smell cigarette smoke in a passing car at 70 mph. Mine is off the charts, I stay away from everything that smells. You are not alone on this one!

Hi Penny, I would join but don't wish to let my friends know.  Do your friends see your posts also or can you arrange that they don't.  I would really like to join.  Thanks G.

Well Chery I sure thought I was.  My hubs does not believe me I am sure.  I clean the loo with a mask on.  Laquer/perfume/after shave is out.  But now the fumes from our log fire.  I was also out shopping the other day and a lady in front of me had perfume on and I had to get the hell out of the shop. 

I have  not spoken to my doc about this new symptom as I don't really know what she can do for me.  I refused PPI's but my Zantac is not reducing the reflux nor the Mastic Gum.  Diet is well toned down.  How long have you  had this and do you think you can ever get shut of it? I cannot imagine life like this.  I am turning down having a get together with my mates in the early evening for a catch up because I am worried about their perfume, not to mention what I can and can't eat or drink and will it get stuck with reflux and I need to go to the loo to get it up.

Any hints appreciated......................Hate this so much...............G.

I don't like taking medications because of side effects, however, in this case, I will gladly take them if they will help and they do help me. I just can't imagine feeling nauseous the rest of my life. That is the only solution I have found for this miserable affliction. When I feel better the smells don't bother me as much. But there have been times especially if someone decides to smoke even if they are outside I just have to leave it affects me so severely. 

Are you nauseous all the time? 

You can create a secondary Facebook account and keep your primary account for your friends and family. That's what my husband set up for me, as I also didn't want to share. I access my secondary account through my iPad and my primary through my iPhone, but expect it's possible to switch to your different accounts on the same device. Do a Google search on how to set up a secondary Facebook account. And then search for the LPR and GERD Support Group, requesting to become a member.

Hi there, no I am not at all nauseous this time.  A few years ago when I had gastritis this was my main problem but not this time round.  I can get a fleeting sick feeling when I am cleaning though.

Or just send your hubs to me lol lol - I'm a bid of a nerd on computers.  It's a flippin wonder I found this site - but very glad I did.

I take Zyrtec when I clean it seems to help. It is better when you are on it consistently rather than PRN but it does help.

chery what is Zyrtec? and not sure what you mean by PRN.

Can I ask what meds your doc gives you?

Yes! My sense of smell is off the charts as well.

Yes I have same prob.

Can't deal with any smells.

And wander why they promote perfumes etc

Cleaning supplies yes Petri etc

And the worst cannibus smoke

And never know when a smell

Body odors on buses etc

Food smells OK so far

Thanks

Please ignore 'room' in my post it was supposed to 'to' -

Yes it is not good.  On this forum, you will find a link for DownwithAcid which I have read.  It would seem that the only way out of this is through gentle diet for at least a year.  I have modified my diet hugely and kept a food diary but find one day a food is fine and no problems for a couple of weeks, then the same food hits me hard.  Even porridge and mashed banana which I normally find very good can, one morning, set me off.  It is hard to keep track.

Hi all, 

It’s awful, isn’t it. I’ve been suffering from reaction to chemicals, exhaust fumes, burning wood, mould and dust for a while now. A new bathroom was fitted in my flat and I still can’t use it months later owing to the strong glue and Lino used in an unventilated area. My throat is in intense pain, mouth, lips and ears burn, chest, Esophagitis (spelling) pain, sweating, nerve pain in face, etc. Ive had to stay away from my home for ages. I’ve developed acid reflux recently too - wondering if it was linked. My doctor thinks I’m imagining it. Although I feel so sorry for others suffering from this, i at least realise I’m not going completely mad! How should I deal with this, please? Thanks folks 

Hi Jane - my sympathies.  I had all these very same symptoms which came out of the blue.  I had HH/GERD/Esophagitis confirmed and took Ranitidine and Mastic Gum plus Pepsin.  It eased the reflux a lot then I got this darn sensitivity.  I have an open log fire and that was a nightmare.  Whereas for years I loved the smell, all of a sudden, it caused pain.  Hair laquer and deodorant were out and colognes and toilet cleaners etc.  Petrol and fumes hurt, underground carp parks and exhaust fumes, I had to run from. 

I researched and came across Kinesiology - I had heard of it but not for what I had.  I contacted the lady that did it and she assured me she had helped people before with it.  I was desperate and had a session.  It lasted 2 hours and was very reasonable in price.  She could feel inflammation in my body via my hand muscles.  4 days later the symptoms started to go.  I had another two sessions and that was over a year ago and I am still free of this sensitivity. 

When desperate, we to have a go at anything coz this sensitivity is a nightmare.

Hope that helps you a little.  Good luck.

p.s.  My doc actually smiled when I said I had this problem and just said "how strange, never heard of it before" - hence me doing my own research.  People don't believe you, I know my hubs did not 

G.

Thanks Gwen for the advice 

I will try Kinesiology - it’s making my life unbearable.

I’m glad you found a cure and can enjoy your fire again x 

HI again Gwen, 

I saw a kinesilogisy here but it was no help - she advocated a complete diet change, which I have done and my sensitivities are just getting worse. Nail varnish and diedorant are starting to make my throat swell now and they didn’t before. I’m guessing you are UK based. May I ask you who you saw and where they are, please? 

Many thanks 

Hi Jane, what a nightmare - I will pm you as not sure if I can put her details here.

Gwen (Manchester)

THanks so much Gwen  

There is a Dr Michael Vaezi from Vanderbilt Hospital in America that has a special interest in LPR. I think he has done some research. From what I have read he doesn't appear to have cracked any further treatments. Not sure if anyone has been to see him? I live in Sydney, Australia so, out of the question for me! If anyone wants to investigate him who might live in that area? Maybe if they do, they can refer him to this blog. Most of us I'm sure would support him in his research in whatever way we could, or able to do. I had the fundoplication surgery in May 2017, it helped with the discomfort after eating (middle of the chest pain/discomfort) but, unfortunately not with the LPR. The surgeon mentioned Dr Vaezi's name when discussing the interest in the medical profession of LPR. The surgeon put me on 3day steroid treatment for the treatment of voice problems, but said not to use for long period because of the side effects. But I do try this for 3 day spells until the bottle runs out, that how desperate I get at times.

 

Dear Jane and Gwen, Please would one of you mind passing me on the details of the kinesiologist - I am really desperate for help with this. Its so severe right now. Please help me. Thanks