balance
Posted , 12 users are following.
is anybody having trouble with balance or walking. I sometimes feel so off balance. Will yhis get better?
0 likes, 19 replies
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Notes on balance
elizabeth20640 karen81902
Posted
I did for a time Karen, but don't seem to have it anymore, can't remember when it stopped along with blurred vision, I'm down to 6mg now come down from 80mg, do have thigh pain, but it will get better take care
EileenH karen81902
Posted
A lot of people complain about balance problems - as well as clumsiness! It does seem to improve with time, I used to fall over my own feet - it went away but I had a flare in the spring and when I think about it, my legs don't feel as if they are doing what i want them to! It's not bad, but it is there.
karen81902 EileenH
Posted
EileenH karen81902
Posted
Several of us have spoken in the past about how many plates and glasses we dropped! You aren't alone! That it is "normal" is another question...
caroline83483 karen81902
Posted
balance improved , no longer need my cane I can see light ahead.
Have had PMR for 34months
Very best wishes
Caroline
ricky23486 karen81902
Posted
Karen... I just read your balance question after returning from an evening walk .....and commenting to husband that when I turn my head left or right to look at something while walking my sense of balance is disrupted - I don't know if this happens in daylight - I will check it out - but there is a bit of a tendency to 'stagger' - and that is without alcohol.....
Mrs_Hobbles karen81902
Posted
My daughter has christened me Jack Sparrow cos of my tendency to stagger about the place, she questions whether I've been tippling on vodka throughout the day! We have a laugh about it but it can be embarrassing when people don't know your situation. Looking forward to it improving and hope it does for you too soon!
walter98524 karen81902
Posted
AND THATS WHEN IT HAPPENED. I HAVE A INNER PROBLEM DUE TO MY VERTIGO ATTACK AND NO WAY WILL IT GET BETTER.. I HAVE SPENT ALOT
OF TIME AND MONEY BUT NO HELP IN SITE FOR ME
WALTER98524
Nefret walter98524
Posted
EileenH walter98524
Posted
Don't confuse the two things - if you had vertigo prior to developing PMR (and that is what is seems from your posts, saying you have been on pred for 6 months but the vertigo was 10 years ago) then it may not be due to the same thing.
If it is associated with the PMR, then yes, in the vast majority of cases it WILL get better. But as Nefret says - has the PMR made the dizziness worse? Or conversely, has pred helped at all?
EileenH karen81902
Posted
Please everybody - if you have balance problems of any sort that go with your PMR or GCA could you go to this survey and complete it:
https://patient.info/forums/discuss/research-project--535782
Our balance is very dependant on our ears so it is not only hearing problems that are important but also any dizziness or simple balance issues - such as finding walking a straight line difficult! Please comment appropriately on the survey form.
barb30898 karen81902
Posted
Hi Karen,
i noticed, around the time I was diagnosed, and whenever I have a flare up, which I fear I am having now, I lose my stability.
I t tends to disappear, as I get over the flare.
i recently had a surgical procedure on veins in my legs, that weren't working efficiently, and asked the doc to give me a burst of prednisone, presurgery.but he said it was unnecessary and I am now extremely lethargic, and unstable, when I walk. I am not in much pain, and am waiting to see my doc, to test inflammatory markers, just out of curiousity, as I dread moving up from 1 1/2 mg, which I've been very comfortable with, and was actually ready to reduce, again, soon.
wishing you well and hoping your balance improves, soon.
barb
daisylazy karen81902
Posted
Lately, even though i am down to 4mg of pred i feel dizzy when i look up or turn my head .I didnt have any of this on higher doses .Hope it goes away .Good luck
Anhaga daisylazy
Posted
I had something similar, I perceived it as lightheadedness not dizziness, starting at about 4 mg and lasting right through a couple of months at 3 mg. I'm still at 3 mg but it's gone. My gp suggested I drink more water but as I was practically awash all summer I wondered if perhaps I wasn't absorbing the water so now I sprinkle a little more salt on my morning eggs and that sensation has virtually vanished. Unfortunately the skipped heartbeats haven't diminished, which I'd associated with the lightheadedness, so I guess I'll be bringing up the subject again in a few weeks.
EileenH Anhaga
Posted
karen81902 EileenH
Posted
Anhaga EileenH
Posted
EileenH Anhaga
Posted
Me too - no, just wondered if it had been anything to do with adrenal function lagging. Salt craving is the body's response very often and taking enough salt sorts the problem.
Anhaga EileenH
Posted
Didn't know that. We don't even own a salt shaker so it's entirely possible my salt intake was too low this summer. I'll carry on with the few extra crystals every morning, just in case.... I'm definitely suffering increased fatigue these days which is beginning to worry me.