Do I have Lyme disease?
Posted , 3 users are following.
In october 2014 i suddenly started having really bad lower back pain. My GP said i have UTi and prescribed me some antibiotics. However the pain did not go away and i ended up in a&e a few times in November and was admitted ti hospital in December 2014.
They thought it could be my kidneys but CT and various tests showed my kidneys were ok.
My pain still stayed and i was in and out of a&e and hospital. Each time I felt like someone was squeezing the left side of my back ans I couldnt breathe. They would give me morphine but it wouldnt do anything.
Soon after i had colonoscopy which came back normal. I even had laparoscopy which also came back normal.
In September 2015 my pain spread to my left leg and i get pins and needles as well as burning sensetations.MRI and X ray came back normal.
Rheomatoligst said all my blood tests were ok ad they dont know why im in pain.
However I was still in pain and in and out of hospital.
As a result I lost 4 jobs and dont have a normal life anymore.
A few weeks back, being fed up of NHS not doing anything to figure out why i'm in pain and being treated like an experiment i went to a private clinic ib in leeds. I gave a blood sample where they found 2 bacterias associated with lyme disease.
I was just wondering if someone could advise me on how to properly check if i have it and what else could i do.
0 likes, 3 replies
vicky89033 Pbe
Posted
hi, most scans and test do come back clear ive had what seems like my entire body scanned bit by bit over the last couple of years. what were the bacteria they found in your blood ? the best way to test for lymes is to get your GP to print off the blood sample form from the public health england site and send a sample to porton down labs ( NHS ) make sure they write on " forward to porton down" also "please test extended lymes panel for co infections" if these are not written on the form or its just a standard blood slip it will go no further than your local lab ( this happenened to me twice) there is also a very good infectious diseases specialist at sheffield hospital (NHS or private) good luck
Pbe vicky89033
Posted
I feel like no one believes me when i go to see these so called specialists. They all came up with different diagnosis but they could never explain why I was still in pain.
I will call my GP tomorrow and make an appointment to get my bloods sent to those labs.
I just want to be ok again and not end up in hospital every month or so.
Thanks for your advice. Really appreciate it.
vicky89033 Pbe
Posted