Posted , 13 users are following.
Can someone please message me, I need reassurance about SVT I am currently waiting for an ablation but the wait is quite long. Some wise words from people would really help me right now as I feel my life is ruined I'm only 23. Thanks everyone x
2 likes, 33 replies
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gene91169 XxaimxX
Posted
We need more information from you, XxaimxX, before we can offer you more detailed words of "experience". That said, and written, many of us have experieced the "ruined life" feelings after onset of SVT, only to eventually experience much more of the many joys of life. If your SVT isn't atypically complicated, you can expect an actual cure from ablation. You then may well feel the exhiliration of being shot at and missed ( so well expressed by Winston Churchill).
Please try to understand that your feelings now are normal. A misbehaving heart deeply frightens most people. Try to be as kind to yourself as you can. We all wish the best for you.
Veejay61 XxaimxX
Posted
I'm 55 and lived with SVT until last year not knowing I even had it. (Diagnosed as acid reflux in my teens). I just dealt with my episodes until one wouldn't stop then I went back to the doctor (40 years on) . I take medication but still get the odd misfire or fluttering . I'm very active being a post person and it hasn't stopped me from doing anything . We are all different though and have our own way of coping and dealing with it.....
XxaimxX Veejay61
Posted
How do you do it? My partner wants to go on a family holiday but I darent get on a plane
I'm glad you are doing well with it, I wouldn't wish this on anyone it's truly awful to go through x
Veejay61 XxaimxX
Posted
XxaimxX Veejay61
Posted
That's my travel insurance going through the roof then
I was suppose to go to Benidorm this year but I cancelled it because the anxiety I was getting building up to it, it's not fair I ant of my family putting them through all this x
CanuckGirl XxaimxX
Posted
The good news: I'm almost 45 and life still goes on! I've learned to work with my SVT thanks to this forum. There are some great people here who can help you with specific questions. It helps to understand ways to shorten the SVT episodes, but also finding ways to cope with the stress of an episode. It's often the lack of control over the situation that causes me stress.
How long until your procedure?
XxaimxX CanuckGirl
Posted
Thank you for replying.
May I ask how long you have has SVT for? I've only had it 1 year so as you can imagine I'm still awfully scared. Last night I was just sat watching tv and my heart started trying to go into SVT it was skipping and fluttering and I dialled 999 straight away but I never pressed call, I sat and got my breath and relaxed and it never progressed into SVT, I'm on beta blockers and since September when I had to have adenosine to reset my heart I've only had the odd flutter.
I have been referred for the procedure but haven't heard anything yet, I saw the cardiologist a couple of weeks ago and he said about 3-4 months as it's the nhs and there's long waiting lists. What do I do when I get one? Or if I feel it's going to start? My partner is working away Monday-Friday so I'm home alone with our little girl and I'm scared to lock the door incase something happens to me and nobody can get in
CanuckGirl XxaimxX
Posted
I've probably had SVT for a number of years, it was often explained away as panic attacks. However about two years ago I had an episode that lasted two hours with a heart rate over 200 bpm. I ended up calling an ambulance (I was alone at work) and had adenosine administered to get back into rhythm.
I find laying on my right side often helps reduce the episode and sometimes stops it. I rarely sleep on my left side - it seems to trigger an episode. Also I'm on a low dose beta blocker.
Hope this helps! :-)
XxaimxX CanuckGirl
Posted
Yes they kept telling me I was having panic attacks but I knew I wasn't!! It took me over a year to get diagnosed as my heart was beating at 240bpm I had to have the adenosine and that's when they advised the ablation as the cardiologist could see how destressed I was.
Sometimes laying on my left starts my heart fluttering so I try to avoid that. Even getting excited about things sets it off it's like I darent be happy anymore. I darent run about after my daughter either and that's not fair on her
I'm on a beta blocker too I think it's helped a lot just not quite enough for eliminate it so I'm having the ablation
CanuckGirl XxaimxX
Posted
I need to schedule a second ablation - I didn't give myself enough recovery time so we'll have a second go of it. I wanted to get into better physical shape first, so I've fixed my diet and am about to add exercise into the mix.
I'm flying to Mexico in February - but I've done a flight and road trip to the US already (I'm in Canada) and did fine. Meditation might help, sometimes we get into our own head with thoughts that add stress we don't need.
Amazingly I didn't have any major episodes on my previous trips - and now I'm on the beta blocker so we'll see how Mexico goes!
sherry08966 XxaimxX
Posted
Have any of you with this SVT asked your Dr.s about the drug Sotalol ??? It was experimental when my son was put on it many years ago. Now he has the defibrillator in him and also still takes sotalol. For this SVT. If you are not taking it, It wouldn't hurt to ask your heart Dr. about it! God bless each and every one of you. I do understand what you are going through with son having it 25 years now!
Alaskan XxaimxX
Posted
I lived with it from age 19 to 40, before getting a successful ablation. When an attack occurred I'd swallow a Varapamil pill, but would otherwise not medicate for the condition. Perhaps you haven't had many episodes yet? The fewer a person has experienced, the more scary they probably are. My episodes were typically infrequent, maybe two or three a year, but lasted for a couple hours or so. I started getting them much more frequently after the birth of my child, hence the decision to get an ablation. Remember that SVT is no indication of heart disease and is not life threatening. Good luck with the ablation procedure. For me, it was much less dramatic than I had imagined.
XxaimxX Alaskan
Posted
Thank you!!! I'm so happy for you how does it feel to be 'normal'?
I had my daughter February last year and mine started in July last year, I know people say it won't harm you but it really feels like it will. I seem to get an episode every 2-3 months. I've been doing really well I've gotten myself a job to help provide for my family but the SVT is scaring me I'm scared it will happen at work, in the car, in the bath. I'm not living life to the full because I'm scared. I really hope they can cure it for me fingers crossed!
CanuckGirl XxaimxX
Posted
Alaskan XxaimxX
Posted
It's a relief, for sure. Every once in awhile I'll get a couple fast beats, like it's starting again, but it hasn't in the 17 years since. After my procedure I said to the doctor "thanks for giving me a new life", which it really felt like at the time. He obviously appreciated the comment, and replied, "it usually works that way".
sherry08966 Alaskan
Posted
Isn't that so nice Alaskan? See things get better. A lot of the time God knows what is best for us even when we are a bit scared!
crissy10179 XxaimxX
Posted
I feel for you there's nothing worse then feeling scared ive been having attacks since i was 16 im now 43 i used to have them every couple of months and when i was 32 they stopped until i was put on anti deppessants a few months ago and something in the medication set them of again i just started back at work also and look at it like you might not get one for ages so deal with it as it happens or you wont live your life hun i wish you well and theres nothing worse then fear
poppy08416 XxaimxX
Posted
If it happens in the car you pull over. If it happens in the bath you get out. It's not like it paralyses you.
Think of all the people living with epilepsy who are genuinely helpless with a seizure. SVT does not render you helpless - not even close. Not even when it's over 200 bpm - you'd still have plenty of energy and ability to pull a car over (even if you're on a highway and 10miles from an exit) or get out of a bath.
You ARE normal. You just have a pathway in your heart that plays up every now and again.
XxaimxX poppy08416
Posted
Thanks for the stern words I appreciate your reply.
unfortunatly I have had this for just 1 year so I'm sure you can imagine it's scary for me. I have always suffered from anxiety and panic attacks so a heart condition is a big deal for me. It's taking me a lot of time to come to terms with this but I think I'm making progress.
Good for you for getting on with your life, hopefully that will be me too one day!
I know you say it's only an inconvenience, which is what I think right up until it happens then I'm scared once again. I am however trying to be strong and not let this win! It's a battle I fight daily