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Anyone with Tinnitus and ETD?

Posted , 4 users are following.

megan117
megan117

Hi All

I have been diagnosed with ETD and have been suffering from it for over 10 years now. I also have tinnitus in right ear and significant hearing loss. I constantly perform the valsava maneuver many times, daily (especially when I need to focus or really listen to something) I am going to google the eustachian Tuboplasty and  balloon Tuboplasty as soon as I am done posting. Just wanted to see if anyone else had the tinnitus WITH the ETD?

 

1 like, 15 replies

15 Replies

  • mikescape
    mikescape megan117

    Posted

    Yes
    • mikescape
      mikescape megan117

      Posted

      I have had it about 5 years and in the last 6 months it has become worse. By worse I mean my ear closes/becomes congested about every two weeks. Antibiotics usually clear it up in a couple of days but the tinnitus never subsides much. ENT thinks it is caused by acid reflux but treating it for 3 months (elevated head of bed, no food 3 hours before bedtime, eliminate certain foods, small meals and Prilosec) has done little to help. Naturopathic doctor thinks it is TMJ with other possibilities being food allergy or hypothyroid, Just had a food allergy test and waiting on results. I will have a thyroid test in the next couple of days for hypothyroid which I believe is a more likely reason for this as I have other symptoms.
    • megan117
      megan117 mikescape

      Posted

      I have it from sun-up to sundown and am looking into Balloon dialtion of the eustachian tube. Everything I read on the matter, points to my descriptions. I have hearing loss (especially in one ear that has the tinnitus) From what I have also read, ETD can result in conductive hearing loss, so I want to get this done asap. Feeling lots of pressure in sinus areas on face lately (and we are in winter) so dust mites are probably the only allergen responsible. I too had allergy tests, and dust mites were high on list.
    • mikescape
      mikescape megan117

      Posted

      My standard allergy tests showed nothing so I had a blood draw for food allergies. I feel like I have allergies and sinusitis a lot. I always have crackling in my ear and never know when it is going to close off. It is my right ear only. I would be interested to hear what you find out on Balloon dilation
    • megan117
      megan117 mikescape

      Posted

      I will keep you updated if Rochester NY has a surgeon that perfoms this.
  • mikescape
    mikescape megan117

    Posted

    I know there is a surgeon in Boston named Poe. He is at both Boston General and Boston Children's hospital. I use to live near Boston and lived in Rochester as well. The winters are rough there.

  • Olizzieo
    Olizzieo megan117

    Posted

    Hi Megan, having tinnitus with any sort of hearing loss is quite normal. Wearing a hearing aid will help bring sound into your ear so you don't notice the tinntitus. The ballooning is well worth trying if an ENT says your ear is suitable. I have seen my first client that had the procedure (I am in Western Australia) and it was successful. Have you seen an ENT who has tried different sprays and medications?

    • megan117
      megan117 Olizzieo

      Posted

      If you mean flonase and allegy meds, yes, I have tried them. I have netti potted also. I just checked and no one in Rochester NY performs  eustachian Tuboplasty or balloon Tuboplasty...which I find alarming, as we have Universtiy of Rochester here!
    • mikescape
      mikescape megan117

      Posted

      Michael DeCicco Canandaigua does tuboplasty for Eustachian tube per the Acclarent site. His profile says he admits to Strong Memorial. I remember that hospital when I attended the U of R and had a good reputation

      Good Luck

    • megan117
      megan117 mikescape

      Posted

      Oh my gosh..that is good news. I didn't check Canandaigua, just Rochester! Thanks...I will follow up on the great lead!

       

    • mikescape
      mikescape megan117

      Posted

      Let me know how they look as far as doing the dilation tube. I am quickly running out of options and heading for trying it. I hope it works and if if you have it done let me know if it works and all the details
    • mikescape
      mikescape megan117

      Posted

      Megan

      I am interested in the balloon dilation so I contacted Acclaris directly on their web sit. They had a medical rep in my city, Seattle, contact me. I spoke with him and they have 3 trained here. The FDA requires the company train them before they can do surgery. acclaris is owned by Johnson and Johnson and the product is Aera. You might want to try contacting them on their web site

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