Posted , 15 users are following.
Hi just joined this forum as my frozen shoulder is really getting
me down. How long has anyone else waited for Treatment?
Had pain since end of June, hospital involved end of August and only had physio last week and ultrasound but was told I need MRI.Hospital is sooo slow, my pain has been unbearable but now I feel like I'm really freezing and worried I'm gonna be too late to get an injection?
0 likes, 37 replies
We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
linda37283 Guest
Posted
Hi namesake!!! Lol
This is my 2nd fs
Went to GP August this year after suffering since May 2016 saw consultant end august had ultrasound & xray back to consultant september had surgery october & had further mua with cortisone shot monday just gone! Was the best thing to do! Pain was awful yesterday but much improved today.......rom vastly improved 
Did say this was my 2nd fs first was operated on Feb 2015 with further mua april 2015 - intensive excersises & I had full 100% range of movements & no pain in less than 3months! Go for surgery you do not need to suffer any longer! There is light at the end of the tunnel 
Cococat linda37283
Posted
Hi - I absolutely agree with you. Luckily I have a consultant who recommended surgery for both of my shoulders ( 2 years apart). Miracle cure! No mucking about with months of pain, injections, manipulation etc etc. Don't put up with it! One night in hospital followed by physio and 3 months later it's as if it never happened.
linda14673 Guest
Posted
HI on my second fs. Was the left one last yr didn't last as long or as painful as this time. My right started in Jan/Feb of this year. I've had months of physio, cortisone injections, MRI, X-ray, hydrotherapy, pressure point massage, used oral anti inflammatory meds, oils, gels, a tens machine, joint supplements, taken turmeric tea, used tiger balm, I think that's it, could be more, I was back with doc yesterday he sent off a referral letter to see a specialist and booked me in for another shot of cortisone injections this fri. My ROM has not improved one bit the only thing which has slightly improved is the severe pain and nervy spasms I had and my sleep is getting better I can tolerate sleeping on my right side for small periods. The next thing to try for me after my injection is acupuncture. I could be waiting a while to see this specialist!! What's with all the Linda's getting fs!!!!
Guest linda14673
Posted
Hello Linda!!! So glad I found this forum it's just nice to hear
From people who understand the pain with this condition. I'm
Trying this week to chase up my MRI referall but as usual
Consultant not available etc etc. I'm trying to see light at
the end of the tunnel but it's difficult! Lack of sleep is
Driving me nuts and not being able to drive or do my
Household chores is so frustrating. I got this condition right
On top of a prolapsed disc in my back. I'm praying for an
Injection which I've been waiting for since September but got
To have all the scans first.
wall1409 linda14673
Posted
Hi
I've had pain since April this year. Had 5 steroid injections and they didn't work as it's in both shoulders. I was awaiting hydrotherapy to see if that would help with physio but now have to wait till I recover from recent brain haemorrhage. Mine are now frozen I think as stopped hurting constantly only hurt when I go to bed unfortunately, laying down is a massive problem. It's a long trek and I feel your pain but it's not a one option fits all. Sometimes waiting for it to resolve itself is the best way but that takes time.
I wish you luck and hope you get treatment soon xx
linda14673 Guest
Posted
Ye I love this forum, let's you know your not alone, a lot of people don't understand how debilitating this disease is! I call it a disease!! And it seems there's is no quick fix for it just a waiting game! Oh to be able to reach up for something, close my bra, put my hands in my back pocket, tie up my hair and shave under my arm properly 😂😂
Guest linda14673
Posted
a ponytail!!!!
Guest wall1409
Posted
Thank you for your good wishes, it's lovely to hear from
others. Good luck to you too
christine63500 Guest
Posted
Guest christine63500
Posted
Hi mine started as a nasty pain in my upper arm which got
Worse. If I make a sudden movement pain is unbearable
for a couple of minutes. Now my shoulder has an intense
pain as well which pain killers don't touch. Pain occurs all
Day and night. You lose the ability to raise your arm, reach
behind or to the side.
christine63500 Guest
Posted
I have had it on and off for years and its definitely worse now  trouble is nhs seems to put these types of issues on the back burner these days
Â
Guest christine63500
Posted
happen. They say frozen shoulder follows a pattern and
goes through 3 stages. Hope you get yours diagnosed.
Elainescribens9 Guest
Posted
Hi Linda....is this yr experience with the NHS....it might definitely be a case of the louder u annoy yr doctor or consultant to get the treatment u need
FS seem to be all different. I am seven weeks on from a MUA. Intensive physio but chronic pain has gone and I am sleeping through the night. This one started in June. I am lucky I used private health insurance. However a MUA is not expensive. I couldn't cope anymore with pain. Hydrodilitation is also available. Good luck...does cortisone injections work...in some cases....that's the problem with a FS there is no one approach...expensive other methods r Trigenics available in Estonia and a new injection in the US which breaks down the scar tissue. ..
FSconversations Guest
Posted
Glad you found the forum, Linda0709, but sorry to hear you're in such pain. We know what it's like!
My suggestion would be to insist on better pain control while you're waiting for further treatment. I had a compassionate family doctor who recommended long-acting codeine. I didn't need it more than a few months, but it made a world of difference.
Also, when I was up wandering at night, reading back on the forum about others' experiences...way back...was a nice distraction from the pain & sleeplessness.
One-armed hug, as they say,
Liane
Guest FSconversations
Posted
Thank you all for your feedback, it's nice to hear how
others deal with this awful condition. Been chasing up
My MRI referal all week but getting nowhere so really got
my firm let's get this sorted head on! Also spoke to my works
Occupational health advisor as I'm still off work. Not had a
Good day pain wise so gonna take the codeine to go to bed on.
It's bedtime that fills me with dread as I know what sort of
Night I'm gonna have!
Elainescribens9 Guest
Posted
I know it must be difficult fighting for treatment when u r in pain...I just had an Xray. Do they suspect something in addition to FS.
Sleeping is awful. Hot water bottle on shoulder. I tried everything.
Good luck
Guest Elainescribens9
Posted
I've had an x-ray and ultrasound last week but they still
want to do MRI even though they say it's definitely FS.
Don't know if that's the norm. I've done stick on heat patch
but didn't help so I think I will try hot water bottle next.
Good luck to you too.
Elainescribens9 FSconversations
Posted
Just remembering the sleeplessness nights and pain before my Mua. I was at a hotel in Oxford after a wedding and took a hot bath at 3 a.m....I got into the habit of eating crumpets...exhaustion and pain and not driving because I wasn't safe....there is light at the end of the tunnel. ..I couldn't see it a few months ago...
Guest Elainescribens9
Posted
wait to have. I will appreciate a good sleep so much when
this is all over!
Join this discussion or start a new one?
New discussion Reply