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Daughter with Achalasia

Posted , 9 users are following.

Jenn071997
Jenn071997

Hi everyone after 10 years of searching for answers about my daughter's unusual choking episodes, we finally have a diagnosis of Achalasia. She is going in for surgery to correct this condition next week. She is 13 years old and has suffered from GERD and what we thought was asthma but seems to be a blockage of her trachea from her esophagus that is restricting her breathing. I am curious to hear how others who have had this surgery have felt after the surgery.

0 likes, 6 replies

6 Replies

  • john1806
    john1806 Jenn071997

    Posted

    Hi

    What type of surgery is your daughter having , I have had a few different types for my Achalasia .

    John

  • donna15310
    donna15310 Jenn071997

    Posted

    Which surgery will she be having?  I am type 1 Achalasia, and am 5 weeks post-surgery now.  Still healing, and just beginning to trial & error more solid-type foods.

  • AlanJM
    AlanJM Jenn071997

    Posted

    I have heard of a young person with oesophageal asthma.   It is something that is a very specialist area for the doctors to diagnose.   I think once the diagnosis had been made and it was clear exactly where the problem was, then it turned out OK.
  • 1blindmice
    1blindmice Jenn071997

    Posted

    Good luck to you and your daughter.  I too went years telling doctors something is wrong and finally had a GI do the mamometry test and my pressures where so high.  I remember one normal number would be 75 and mine was 174.  I had a started with Botox that seemed to make it mad. Everything I read just didn't sound like something I wanted to do.  Just didn't want serious surgery removing parts of my body.  Found a specialist in Tampa FL., he did a pneumatic dialation.  Worked wonders!!!!!!.  It's a short 30 minute procedure, nothing removed, in 2 days back to regular eating no problems.  No GERD, no soft food diet.  Now this may only last 2 to 3 years, but I figure it is better than having something removed. Did another mamometry test (worst test ever invented) and my esophagus looks like a healthy normal esophagus.  So good luck I hope your daughters outcome is a great as mine was!!!

  • tc7
    tc7 Jenn071997

    Posted

    Was diagnosed with Achalasia 7 years ago. Like 1blindmice also had a dilation, was great initially but the esophagus gradually started tightening. The (very) good news was that it settled to be considerably better than it was at first. Have to drink a lot of water at meals but that's a small price to pay. Good luck, and I hope your daughter's condition improves greatly with whatever treatment you go for.

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