Posted , 11 users are following.
Been tapering very, very slowly and am now down to 2mg from 20mg. Still have some swelling in hands, but manageable. Would appreciate advice on how to taper from here. The 10% limitation doesn't really apply when taking 1mg tabs.
0 likes, 12 replies
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EileenH Daniel1143
Posted
iellen32 Daniel1143
Posted
It would be great to get a link for the slow tapering though. I already asked it here.
Would I have it I would send to you immediately because to help whoever in need is a must for me.
At least try to limit the sodium in your diet using herbs, dried or fresh, ginseng, turmeric.
Your swollen hands are calling for an specific attention.
Take care. Best health wishes to you in 2017!
iellen
EileenH iellen32
Posted
I have posted it repeatedly - and it is ALWAYS available in the post on the front page of the forum with all the links. I can only TELL people things!
https://patient.info/forums/discuss/pmr-gca-website-addresses-and-resources-35316
It is in the replies section.
EileenH
Posted
It is also here:
https://patient.info/forums/discuss/reducing-pred-dead-slow-and-nearly-stop-method-531439
There is also a search function for finding things and, if all else fails, you can always go to the front page of the forum and then scroll down through every post there has every been on the PMRGCA forum.
amkoffee EileenH
Posted
EileenH amkoffee
Posted
Tell me about it - and this isn't the only thread I've been asked for such links to info in the last 24 hours!!!!
BettyE Daniel1143
Posted
I have stiff, sometimes painful arthritic hands (not PMR connected ). After a session at the local NHS physio and OT clinic I bought myself a therabath. It doesn't cure anything but the comfort from the hot wax is very welcome.
It's American manufacture but readily available in UK and got the thumbs up from the clinic.
I got mine from Parkgate Mobility and you almost ceratainly will be able to get VAT exemption
Anhaga Daniel1143
Posted
Hi Daniel. I'm now at 2.5 and kicking the tires to see if 2 will take. It took two tries and three months to reduce from 3 to 2.5. But I read about people who alternate their doses. So I thought this time I would try, in the middle of the DSNS taper - see Eileen's post with the link, to alternate rather than moving directly into more frequent days with the new dose. So after I taper to the two days old dose of dead slow taper I will try a couple of weeks of alternating the doses. That's the plan, anyway. We'll see.
EileenH Anhaga
Posted
I've started doing that too and it does seem to help.
Mrs.Mac-Canada EileenH
Posted
I also follow a version of the DSNS method but because I've had a couple of flares while reducing I've slowed it even more. I started reducing from 5mg to 4.5mg on November 16th with DSNS then after the first three weeks modified it a bit. I and am now at 4.5 mg for 2 days, 5mg for 1 day then 4.5mg again for 2days. If I'm feeling OK after 3 cycles of that dose I'll increase the 4.5mg to 3 days with 1 day at 5mg and do that for 3 cycles until I get to a week of 4.5. I'll then stay there for a week and if I'm feeling OK I'll begin the same routine to reduce to 4mg.
So far so good!! As always, we need to follow the method that our own bodies are telling us. I wonder if there are any two of us that have the same experience with this.
Hugs to all! I don't get many chances to be involved in the forum these days but I love to hear how everyone is doing, especially the successes.
🌸
EileenH Mrs.Mac-Canada
Posted
Mrs_CJ Daniel1143
Posted
Anhaga and Eileen mentioned their taper idea and I have also had good results with staying on alternate days for awhile.
I have also stayed at the various Dead Slow levels double the time; ie, repeating each step twice before moving onto the next one. That way I still feel like I'm making progress even tho' it's at a very slow pace!
Once I got to 4 mg I found it best for me to reduce by 1/4 mg so I've been cutting my little white pills into quarters. Easily done with a sharp knife. I'm currently at 3 1/2 mg.