Posted , 4 users are following.
I've had TN for two years now. Depending on the type of pain, it feels like my gums are swollen from the constant stabbing at times. Has anyone else experienced this or is that not a thing?
0 likes, 8 replies
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sandy5221948 lhicks10
Posted
My gum pain is in the upper left front. It feels like I have a toothache up in the root, but that continues up through my nose, into my eye, then my forehead and temple. On my worst days, it feels like searing pains running through my scalp. My pains are horrible burning pains. I've been diagnosed as either having TN or cluster headaches. Seems it doesn't matter which I have, the Trigeminal nerve is responsible for both. I've been going at this since October with a maximum of 4 days when I don't have pains. I just had 3 straight days with pain, (longest lasting 1 1/2 hours) but the intensity is far less than before. I'm taking Gabapentin, and when I have attacks, I've found it helps to heat a thick wet cloth in the microwave as hot as I can stand it, and hold it to my face. Sometimes it only takes 3 or 4 times, other times it takes 10-15 times. When it's that bad, I've found walking around with the cloth to my face helps. Thank God.....I do not have those killer pains anymore. Though....I've come close!
lhicks10 sandy5221948
Posted
I can't use heat on my face I use ice because it kind of numbs it. I'm always in some type of pain and it's so irritating. Does Gabapentin work for you?
sandy5221948 lhicks10
Posted
Oh heck yeah! Gabapentin has saved my life. I had already told my husband and daughter I loved them, but I couldn't go on like that. Even though I still have attacks, they are not nearly the intense pains I was having. My attacks were lasting all night long, and I was crying and begging for it to please stop with every breath. My worst pains now are nothing compared to what they were.....thank God! I only take 300 mg 3 times a day. A lot of people take much more, but as long as this controls my pains, I can look forward to taking it longer before it no longer works for me. I just talked to a woman who's daughter has this. They have connected her condition to being vitamin B12 deficient. Her doctor told her she needed the injections once a week in order to repair the nerve. My regular doctor told me to start taking B12 several months ago.....way before I started having these attacks. Now, I'm wondering if I need the injections. You should look into that too.
lhicks10 sandy5221948
Posted
I'll definitely talk with my doctor about it. I take cymbalta 30 mg twice a day and it really doesn't work at all.
Mary123123 lhicks10
Posted
lhicks10 Mary123123
Posted
sally90 lhicks10
Posted
I've had swollen and sometimes bleeding gums. I thought it was when the TN was really bad and I hadn't been able to clean my teeth, but I now think it is when I increase the drugs a lot. I am sure it is caused by the drugs. I am on oxcarbazepine at the moment. I have tried so many I've lost track. They have all caused problems, feeling like a zombie, not being able to move or lift a mug and mouth soreness/swelling and bleeding. I also have progressive MS.
I offer you my heartfelt sympathy and wish you all the best.
Sally
lhicks10 sally90
Posted