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New to this please help

Posted , 8 users are following.

christabel50943
christabel50943

I was diagnosed last month and have been having episodes since my baby was born 5 months ago. They leave me completely incapable of doing anything I can't even care for my children . I am taking serc for it three times a day but it isn't working is there anything I can do to help .

0 likes, 13 replies

13 Replies

  • eleftherio33095
    eleftherio33095 christabel50943

    Posted

    Probably the next step would be to try intratympanic steroid injection (steroid injection through the eardrum).  This will go directly to the problem.  Discuss this with your ENT doctor.

    Eleftherios S. Papathanasiou, PhD, FEAN

    Clinical Neurophysiologist

    Fellow of the European Academy of Neurology

    • anita61496
      anita61496 eleftherio33095

      Posted

      I have a question about the steriod injection.. I'm not sure if it was just coincidence but I was given a steroid shot for tennis elbow and the next day I had my Meneirs episode and the worst one to date. Could there be a correlation? I was given steriod caps to take the next 6 days... my episode lasted 14 (just feeling better today).

      Could that have been the trigger? I have NEVER had such a bad episode until then

    • eleftherio33095
      eleftherio33095 anita61496

      Posted

      The steroid injection at the elbow, with a tendency to cause fluid changes, could have caused the episode (its possible) since you already have the sensitivity/low threshold for MD episodes which has its own fluid imbalance problems.

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology

  • NeddyO
    NeddyO christabel50943

    Posted

    Serc takes at least a month to work and you will almost certainly need a higher dose. For example I am on 64mg tds and under control. Ask your consultant to increase your dosage, It is a very safe drug and has helped me greatly.

     

    • NeddyO
      NeddyO daniel_43572

      Posted

      Betahistine HCL - it is a drug that was designed to improve blood flow and hence reduce pressure in the inner ear. In the UK it is available in 8mg and 16mg tabs.
    • NeddyO
      NeddyO daniel_43572

      Posted

      It does not have FDA approval unfortunately.

      I believe there may be one or two pharmaceutical laboratories that will produce it on a named patient basis when ordered by your ENT specialist.

  • anita61496
    anita61496 christabel50943

    Posted

    My sister had itbreally bad years ago. She changed to strict Paleo and hasn t had an episode since (not a full episode). Besides caffeine and salt reduction.. a change in total diet helped her tremendously.

    Mine started on 12.22 and lasted 14 days sad

    Staring Paleo to see if that will work as it did for her.

  • kelsey0817
    kelsey0817 christabel50943

    Posted

    I don't really have advice for you, but I just wanted to say I know what you're going through! I had my daughter in December 2015 and this past summer I was basically out of commission because I was having such severe attacks at least once a week and on days it wasn't vertigo I was still dizzy. Its so hard when you have a baby! Definitely get as much help as possible. Hope you find some relief soon!!

  • donna16710
    donna16710 christabel50943

    Posted

    The hormonal changes that you go through postpartum is probably what is exacerbating your MD. If you are not already on some sort of diuretic it may be helpful. I agree with our good Dr Eleftherio that the steroid injection would also help greatly.
  • jackie72283
    jackie72283 christabel50943

    Posted

    I really sympathise with you. That must be frightening. I can't imagine how you must feel. I was having episodes of vertigo up until May when I went to a physiotherapist, who has stopped the vertigo. Absolutely no episodes since then. We are all different, so who knows if it applies to anyone else, but just thought I should say.

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