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I have bilateral dermoid cysts and was told yesterday that they want to remove both my ovaries

Posted , 5 users are following.

duffy30
duffy30

Hi.. I wonder if anyone is in the same situation and like me doesn't know what to do. I have had an MRI and confirmed bilateral dermoid ovarian cysts. The left one is 6cm x4 and the right 4cmx3.. I went to see consultant yesterday and was seen by one of the team who said they would remove both ovaries and tubes and did I want a hysterectomy at the same time??!!.. I'm still a little shell shocked and don't know what to do!.. I'm 54 years old.. 4 years post menopausal and have managed the symptoms by taking natural remedies such as sage and starflower oil. I am concerned about losing my ovaries and wondered if anyone else has any experience similar to this.. xx

0 likes, 12 replies

12 Replies

  • bobbysgirl
    bobbysgirl duffy30

    Posted

    Are they giving you any trouble? Have you had a CA125 test? If they are causing problems then go ahead with the operation. But if not I would just ask them to monitor them for a while. You are right to want to try and keep them.
    • duffy30
      duffy30 bobbysgirl

      Posted

      Hi there..thanks for replying...They occasionally give me a dull ache but nothing major.. and they told me that the scan showed nothing sinister ?.. I wasn't very confident in the young member of the team and would have been happier to see someone a bit higher up who could explain things better.. Should I push to speak to someone else?

  • katy08921
    katy08921 duffy30

    Posted

    Hi lovely I had a bilateral ovarian cystectomy 14 months ago one in my left ovary was 7cm and my one in my right ovary 10cm! all left in tact although I am going back as I've had nothing but constant pain since, I've had scans and they've told me I have a thickened lining and my left ovary is enlarged! I asked them to take the lot out due to pain and I'm 28 but now I'm back to square one! I hope you get yours sorted xx

    • duffy30
      duffy30 katy08921

      Posted

      Hi there.. Oh I'm sorry to hear that...you're very young to lose your ovaries.. Is there no other way?..I got the impression that because I was 54.. have had children and the menopause that just "whipping them out" is easier... But I struggled through the menopause with natural products and refused HRT and now looks like my efforts will be in vain as will have to go on it if I have both ovaries removed...😒

    • katy08921
      katy08921 duffy30

      Posted

      They were originally going to take them out by key hole but changed their minds at the last minute because of them rupturing and not being able to keep them in tact. I wish they had of just taken them out! The pills make it worse I bleed through them, the injection I bled through, and I refuse to have coils it's painful enough. I have begged for years since having my little girl. I struggle with the pain and I'm grouchy with it. They have checked for pcos bloods rule that out. And scans show no evidence of endometriosis. They said after the op there was a chance of them returning but nothing I must say I'm 28 and would bite their hand off for that offer xx I hope they sort you out if your not happy change consultants although if your in pain the process may take time to swap over xx

    • bobbysgirl
      bobbysgirl katy08921

      Posted

      A good friend of mine had keyhole surgery like that - they screwed up and she now wears a colostomy bag! You had a lucky escape.
    • duffy30
      duffy30 katy08921

      Posted

      Oh it sounds like you've been through it.. 😒So sorry that it's not sorted out yet.. I'm going to speak to the consultant before I decide what to do.. I'm not getting too much discomfort at the moment so don't mind waiting... Good luck to you with your pain. Hope you're feeling better soon..x😊

  • shazzi
    shazzi duffy30

    Posted

    3 weeks ago I had both my ovaries & tubes removed for the same reason, albeit, it was only 1 ovary with the deroid cyst. Most people couldn't understand why they didn't do a hysterectomy why they were there. I don't know why they didn't as I stupidly didn't ask. They couldn't do keyhole as risk of rupturing the cyst. They kept the cut to a minimum which was smaller than what I thought, about 61/2 cm. When I saw the surgeon he was quite matter of fact and said " we will just whip both out as they are no use to you now"! I did feel quite shocked at that point, but didn't really question it. I just went home and googled the cyst etc. I saw the point about why they like to remove when your older (I am also 54)and just thought right, they need to come out! hadn't had a period for about a year so It made sense. We are all diferent but it seemed they were better out than in!

    xx

    • duffy30
      duffy30 shazzi

      Posted

      Hi there.. thank you for replying and I hope you're feeling much better and recovering well.. Have they mentioned anything about HRT to you?.. Or because of our age do you think it's because we don't need it?😊

    • shazzi
      shazzi duffy30

      Posted

      No, they didn't mention it. I thought it wouldn't really apply to me because of my age. I over did it at Christmas which was stupid but I had the op done on the 16th December, so close to Christmas! Last few days have really noticed a horrible nagging pain in my groin, I hope that it is just the healing process.

      Hope that this last bit doesn't put you off at all. Think as I have started to relax more maybe noticing the pain more!

    • duffy30
      duffy30 shazzi

      Posted

      You probably need to ease up and rest a bit more.. Us women do try and soldier on and is easy to over do it! Put your feet up!.. I'm going to speak to the consultant before I have anything done but it sounds as if I'll be following in your footsteps soon.. Hopefully you'll be feeling much better shortly..💕

    • shazzi
      shazzi duffy30

      Posted

      I have started to ease up a bit. Thanks, hopefull I will. Well I hope you get on ok and unlike me do rest after!!
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