Not sure if I have Fibromyalgia

Posted , 6 users are following.

Hi Everyone,

I think I my have fibromyalgia. I have had some symptoms on and off but this time I'm exhausted.

Went got blood work and all came back normal besides cholesterol. I should feel good if labs are normal right? Not. Did CBC, electrolyte panel, thyroid, sugar, iron all good.

Saturday morning I had a 4 hr drive home and about one hr into trip I had brain fog, anxiety, then felt like all energy drained from my body . I felt heavy.

I want to sleep, feel exhausted, no appetite, stomach issues, back and necklace muscles are stiff and headache. I don't know what else it can be. If I rest a while I get enough energy to run one errand or do a thing or two around house then I need to rest again.

Is this what fibromyalgia is like?

0 likes, 11 replies

11 Replies

  • Posted

    Oh YES Amys It sounds the same as a lot of us on here.

    Have you seen a Rheumatologist yet,  if not just aske your GP to refer you on.  They should, after tests, be able to diagnose the problem and hopefully be able to help you.  Big Hugs  x  

    • Posted

      Hi Sukes,

      Thank you for responding. I have not seen a Rheumatologist yet. If symptoms continue I will ask my GP to refer me.

  • Posted

    I agree with the last comment. Get a rheumatologist and they will perform the tender points criteria for fibromyalgia. They also will

    order test to rule out similar disorders. Usual when all test are normal that suspect fibromyalgia but the rheumatologist usually diagnose and rest. If you are stressful and have lack sleep it can cause you the fatigue, brain fog, exhaustion and heavy feeling and headache. I hope this helps. Hope you get the help you need. Hugs🙌

    • Posted

      Hi Kikirae,

      Than you for the information. I am hoping the symptoms will go away.

  • Posted

    It sounds like it to me too.  especially the soreness in neck muscles.  Driving aggravates my symptoms, I guess because you subconsciously tense up, having to be so hypervigilant about your surroundings when you drive.  Re: the labs being "normal"; ask to get a copy of the results and try to find an open-minded integrative specialist for a second opinion. Just for an example, a person's B-12 could be considered "normal" by a conventinal MD, but it might really be in the low normal range, very close to the border of being below normal and the patient could really need supplementation.  Also, conventional MDs ofter interpret a TSH as being "normal" when really it's in a range that an integrative MD would consider needing thyroid supplements.   It really helps all of us to add other therapies, too, like massage, accupuncture, aromatherapy-- anything that will help you.  Hope you can feel better soon

  • Posted

    A doctor will need to diagnose. But a lot of what you say is how I am. The tiredness, the chronic pain, the anxiety, and mood swings for me. Memory lapses. It's has flared up and sadly I have felt suicidal. It is very hard, I don't normally cry, and people who know me know I don't cry but I just feel emotional all the time. Get diagnosed and see what doc says. I'm on so many meds at the moment, l struggle, but I'm hoping by coming on this site and looking for alternative methods of treatment. I'm hoping I'll find a coping strategy. Hope you can continue on here for support.

    • Posted

      Hi Oompa,

      Thanks for responding. How long have you suffered with fibromyalgia? I think talking with others that are going through the same thing helps.

    • Posted

      Yes it does help to talk especially when no-one else listens or can believe how much pain you're in. I guess officially I was diagnosed probably 3 months ago but I have been struggling with the pain for years, I've had people telling me it's in my head, others talking to me as if I'm exaggerating the pain, or simply just not understanding. I guess it's been harder now as I've had changes at work with management, I also asked for reduced working hours, and because I challenged the decision my card been marked and work got harder. I teach but not academic so don't get the long holidays, and well my request to get less hours in an already underpaid job was denied. No support at work, so I felt I should just end life. You might think it's extreme, but my life is crap, I used to have a lot of friends, used to go out every week, could get into relationships, now none of it exists, I hate everything about me and to even go out is hard because I'm always tired or I am in too much pain. I put on a brave face at work even though I'm sore, can't afford to not work. I'm trying to find some face to face focus groups, and someone has sent me a link through this, but even that is having to go out.

    • Posted

      Oompa,

      Sorry you are going through a rough time. I have had anxiety for a long time. At times I wondered if things would get better and it always does. Sometimes it lasts months and sometimes it lasts a few days. Now when I have rough days I focus on remembering how nice the good days are. Don't give up. I find that talking to others who have compassion and understand helps a lot. I also use prayer.

    • Posted

      Thanks, and I know there are people who have it worse than me. I have had an awful last few years, so I keep telling myself it can't get any worse. I'm thinking of going to Canada on my own just to relax and just be on my own, so hopefully I'll have something to look forward to.

  • Posted

    I hope you feel better soon too.

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