Posted , 3 users are following.
Mines has went up to 10cm which I have not heard anyone having quite as large.
Oh top of this I can feel all the inflammation in my throughly and in my last test the day there is a change in it but not to retest for three years.
What's everyone else finding, do you feel you get told enough? Quite worrying when they say their is a change but come back in three years.
0 likes, 7 replies
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Barretts tambdy
Posted
10 cm certainly is a long length. Mine has been 3cm non-dysplastic unchanged for at least 23 years.
If you want to learn more than the consultants and doctors are able to tell you in their 10 minute appointments, see if you have a local support group - or visit Barrett's Wessex website, linked to via the pane on the right, or by going to www BarrettsWessex org uk.
tambdy Barretts
Posted
Thanks I will check your forum out and see if anyone has had similar length, it's not really the 10cm which worried me to be honest that's not that long.
Two things worry me, their is a slight change from last time which has alarm bells ringing with me and why if their is a change they want to wait 3 years god knows.
The second when they do the biopsy I don't take sedative so feel every one they take and seems like they started at back on my throats right down to my stomach which seems much longer than 10cm haha
tambdy Barretts
Posted
I will read the website tomorrow I have been looking online to see the options should it change but I can't see many.
agnes_11651 tambdy
Posted
You need to go back and ask them to explain it more clearly. Don't be afraid to ask otherwise you will continue to worry.
Rabc58 tambdy
Posted
I was diagnosed 2 and half years ago 8cm no further treatment required but now on 3 yearly checks aswell but that is down to NHS cutbacks in Scotland. The 3 yearly check is a concern but can't do much about it. My last check was 8/9 months ago
I still go on nights out and drink alcohol but that's my choice I'm careful what and when I eat and do try to keep my nights out to a minimum. It crossed my mind to get the laser treatment option done privately but would cost a bit. I don't think we are told enough I just got a quick debrief from a nurse saying it was no worse we will see you in 3 years but I was coming round from sedation so it was bit of a blur. I went over the top worrying about it in the first months after being diagnosed but decided to just get on with my life and not think about it too much which seems to work for me
Try not to worry too much but go back to gp if you are concerned
Barretts Rabc58
Posted
UK Surveillance intervals for non-dysplastic Barrett's are shown on the attached graphic. (They are actually the same for US and AUS and most other countries. If you visit Barretts org uk the About Barrett's page haslinks to UK, US and AUS guidelines. )
For short segment, < 3cm, without complications, surveillance intervals are 3-5 years. For long segment, 2 to 3 yearly surveillance is the recommendation.
tambdy Rabc58
Posted