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Clitoris disappeared lichen sclerosis

Posted , 10 users are following.

Mariesm
Mariesm

I have just been diagnosed with LS

My clitoris has all but disappeared! Does anyone know if and how it can be un fused as the gynaecologist at the hospital said there was nothing that could be done

0 likes, 12 replies

12 Replies

  • ava63546
    ava63546 Mariesm

    Posted

    Not true that nothing can be done.  On other forums women share that they have had treatment.  The Association for Lichen Sclerosus and Vulval Health has information so you may want to try them. Looks like they are doing a study with a doctor for PRP which other members on forums have said has helped the clitoris problem.  Your clitoris is probably only buried, which is why you cannot see it.  Hope this is helpful to you.  I have had this problem too and I know how upsetting it can be. I have had PRP and stem cell. PRP was good.  Wishing you good luck and hope you get help.
  • Carpe_Diem
    Carpe_Diem Mariesm

    Posted

    Have a look at the thread on this forum "An experiment with borax" as people are reporting wonderful un-fusing happening.

  • bjc850
    bjc850 Mariesm

    Posted

    This may sound stupid but even if the clitoris is fused it hasn't actually disappeared.  Wouldn't the ability to have an orgasm still be present? Perhaps not as easy to achieve?  I'm asking in case this happens to me.  How horrible this would be.

    • lenep
      lenep bjc850

      Posted

      It is horrible!

      Having said that that, I can still orgasm, but takes forever to get there and it's over in a second . It all looks fine, except smaller..

      Im determined to get this borax working.

      But having examined it left right and center I find it hard to see where it can unfuse. It all looks so "perfectly fused".

    • kippy
      kippy lenep

      Posted

      A friend of mine has total fused labia, no symptoms, and was told by the doctor she does not have LS...... to me, this begs the question, is it because of the menopause?

      Are women being wrongly diagnosed??

    • Anna777
      Anna777 kippy

      Posted

      I just did a little research online and found that other issues besides LS can cause fused labia.  Whatever the cause, the baking soda baths and Borax treatments are helping the labia unfuse, so I would think this treatment would be beneficial for all causes of fused labia.
    • kippy
      kippy Anna777

      Posted

      Thank you for looking in to this. I think I will do a bit of searching. I've have been using the borax twice a day for a week now, but so far no results :-(

    • bjc850
      bjc850 lenep

      Posted

       The information you provided was interesting.  Perhaps I already have fusion of the clitoris because it takes me for ever to have an orgasm and sometimes it takes so long it never comes. Can be so frustrating.  Used to be I was quick to reach orgasm and it was wonderful.  I thought it was just because I was getting older. I do hope you let me know how the borax treatment turns out.  Think I will try it myself.
    • Anna777
      Anna777 kippy

      Posted

      Hi Kippy,

      It took months before I started seeing any unfusing.  I think it depends on each individual and how much fusing they have.

    • lenep
      lenep bjc850

      Posted

      I will let you know. And you too. Good luck. 😊

    • kippy
      kippy Anna777

      Posted

      Thank you Anna, your comments have given me some hope.
    • Anna777
      Anna777 kippy

      Posted

      Glad they helped - we could all use a little hope. :-)
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