Posted , 8 users are following.
Hi I've had a mri scan on my head and spine. And received a letter saying not shown any acute abnormality. Has anyone else had this letter. I've rang up the neurology department and they've said they'll be seeing me soon. Also I've spoken with my doctors and asked if this rules ms out and he said no its doesn't rule ms out at all.have any of you gone through this thanks for your time and help xx
0 likes, 12 replies
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Connie.1 noonoo100177
Posted
So my question is, do you have symptoms that led to this MRI? Why were you having an MRI in the first place? It seems from what I have read, its hard to diagnosis MS most times, theres no exact way to prove it other than elimination of other illnesses. But it seems if people have certain things show up in the MRI, it leads to a diagnosis of MS.
Others can chime in on this if I misspoke. I have learned to not just accept everything doctors say and investigate for myself. Best wishes
noonoo100177 Connie.1
Posted
Thank you for your reply I've not been well for going on 3 years now I have under active thyroid but that's under control the doctors have done so much and referred me to neurologist and had mri on my brain and spine and that was the letter I received just wounder if anyone with ms has had a letter like that xx
carolyn37817 Connie.1
Posted
I went in for a simple day surgery and had a reaction to anesthesia. They wanted to rule out seizure and booked me for EEG and brain MRI a couple of months later. EEG was all clear but MRI showed white matter lesions consistant with MS. Neuro said no as I had not presented with clinical sx. About six weeks later rt sided weakness, numbness on feet and face, non-painful shocks going through my body particularly arms and legs mostly in bed upon wakening. Very scared and hoping that this could be anxiety bringing on these symptoms. Anyone else have this?
Connie.1 carolyn37817
Posted
I would freak out if I started having symptoms like yours Carolyn! I will say the anxiety I had after my trip to the ER would have made me believe I had anything. I don't do medical stuff well and have been eating healthy and walking/running over 900 miles in the last 9 months so it deflates one to think they have something wrong with them.
Now that my anxiety is gone from worrying about that MRI and the doctor canceling my follow up appointment for the end of March, I have none of the strange things going on in body. I was pretty sure it was anxiety but when you are worried, you can talk yourself into being on your death bed!
I hope things become clearer for you
amanda88048 noonoo100177
Posted
noonoo100177 amanda88048
Posted
Or thank you for your reply I'm just finding it hard at the Mo and just want to understand that letter hope your ok it's waiting now for the appointment to see what happens next xx
wendy80842 noonoo100177
Posted
Hi, I'm sorry that you're going through this all too familiar process. Unfortunately, there's a lot of subjectivity about interpreting MRI scans. It seems as though the same is sometimes true about wether or not a person has MS. I was diagnosed with MS in 2004, my neurologist, at the time, said that there were no lesions visible on my brain MRI, but that didn't guarantee that there weren't any. My cervical spine MRI showed several lesions, this and a positive result, from a lumbar puncture sample, made my diagnosis comparatively straightforward. Sadly, many of us have to simply be (frequently ridiculously) patient. I'd always suggest keeping an ongoing record of all your symptoms, experiences, concerns, questions and anything else you feel is relevant, as they can prove useful, for appointments. Good luck.
noonoo100177 wendy80842
Posted
Thank you for your time I'm going to start writing things down as I've started with a twitching in my top lip that comes and goes and a strange feeling in my back like pins and needles were ur bra would be this had started today these are just new things hope ur ok xxx
Brooklynlove noonoo100177
Posted
I have twitching all over my body but it started out with bottom lip twitching for a week straight. I don't get pins and needles in the back but a burning sensation that comes and goes. Brain and spine scans are clear as well as all blood work. So my doctors don't know what's wrong. I've just felt like something is seriously wrong with me for the past 6 months. I guess only time will tell.
wendy80842 noonoo100177
Posted
I forgot to say, in my 1st post, I've seen various posts, from others who have MS, who find, like me
that finding some sort of relaxation techniques that give you a focus point, that helps you kind of move away from
your symptoms, and your, understandable worries about your health. I find that sitting cross legged, on the floor
and stretching out my muscles, while clearing my mind really helps me. I hope that you work out 1 or more ways
that help you too. X
tbenve noonoo100177
Posted
Usually an MRI would show lesions if you have MS,however I've heard of MRI's not showing lesions and still experience MS symptoms. Best bet is to speak to your neurologist.good luck!
wendy80842 tbenve
Posted
There are different resolutions/standards of MRI, so lesions can be missed. It's also the case, that lesions can be so small that they're not visible, however, there might be many of them, or they might be positioned in areas of the brain where even small lesion could have a pronounced effect, neurolologically speaking.