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NTM with bronchieactisis

Posted , 4 users are following.

kirst5
kirst5

Hi

I haven't posted in a while as I've been incredibly sick and hospitalised twice and also a picc line. I've just found out last night they have found the NTM nontuberculous-mycobacteria and I will start treatment straight away for 18 months. Still trying to digest and also the fact I've never heard of it before so was wondering if anyone has it here also

Kirsten xx

0 likes, 3 replies

3 Replies

  • hypercat
    hypercat kirst5

    Posted

    Hi I am sorry you have been so ill and in hospital.  I can't help as I have never had this or even heard of it.  I wish you all the best though. 

    I am on another lung site - The British Lung Foundation,  and there are some on there with bronchieactisis so maybe they could help?   I don't know which country you are from but there are members from all round the world there.  x

     

  • Vee2
    Vee2 kirst5

    Posted

    Hi Kirsten,

    I advise you to contact the lung foundation or association in the country you reside through them you may be able to find a dedicated Bronchietasis forum and in addition support groups in your local area.

    NTM is as the name describes, its an environmental mycobacteria which can be found in soil and water. The American lung association has a page on this as does wiki.  NTM lung infection occurs when a person inhales the organism from their environment.  Good you are being treated for this.

    If you are UK you can make contact with the British Lung foundation helpline by visiting their website. Or as hypercat suggest the BLF forum at healthunlocked.

    Links which may be of interest to you:

    BLF page:   https://www.blf.org.uk/

    Chest and Lung forum - Bronchiectasis discussion:  https://patient.info/forums/discuss/what-s-the-difference-between-copd-and-bronchiectasis--548293  Incidentally Bronchiectasis does not come under the COPD banner.

    Patient info Bronchiectasis: https://patient.info/doctor/bronchiectasis-pro

    Best wishes V

    • hypercat
      hypercat Vee2

      Posted

      There is lots of infomation online on BLF.  There are also quite a few sufferers of bronchi on there which is why I recommended it.  x

       

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