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Eye pain

Posted , 8 users are following.

joanne49021
joanne49021

I have TN. Always have sharp pain. On gabapentin. My eye has started hurting and seems to get worse when using iPhone, computer or reading. Anyone else experience this or do I need to see eye doctor?

2 likes, 17 replies

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  • Pam_in_pain
    Pam_in_pain joanne49021

    Posted

    Hi Joanne, I did not have eye pain but I could not use my cell phone and the computer as well. Seeing that I work on the computer I had get a glare screen, wear a mask and keep the side of my face that had the pain turned away from the computer. This was when I was first diagnosed though. How long have you had tn?
    • Pam_in_pain
      Pam_in_pain lee12629

      Posted

      I needed a mask because everything caused me pain. A breeze, a tear rolling down my face, the computer and my cell phone.
    • lee12629
      lee12629 Pam_in_pain

      Posted

      So sorry you are going through so much. I do hope you can feel better soon. Xx
    • joanne49021
      joanne49021 Pam_in_pain

      Posted

      Hi Pam. I was just diagnosed June 15, 2016. Total shock to me. Was brushing my teeth and had excruciating pain shoot from nose across eye. Doc started me on carbamazepine but it made me a zombie. I was comatose seriously. We adjusted mg and still could not function. Saw neurologist and he changed to gabapentin. I was on 900 and 2 weeks ago had to go to 1200.
  • lee12629
    lee12629 joanne49021

    Posted

    Hi,i am pretty sure i read it can caus eye pain,but im no doctor,probably best to see an optomotrist.
    • joanne49021
      joanne49021 lee12629

      Posted

      Thanks Lee. How long have you had it? And where is your pain?
  • alison42350
    alison42350 joanne49021

    Posted

    Hi Joanne

    I have stabbing or pinprick pain in my right eye and this is worse when I try to do any close work; which is a problem as my job involves 8 hours a day in a computer!

    I have seen the optician 3 times since October and my prescription has changed each time. I am currently trying contact lenses (as it hurts to put my glasses on).

    I would mention this to your GP and see what they say. The optician did say that the changes where possibly due to the condition.

    Take care

    Alison

    • joanne49021
      joanne49021 alison42350

      Posted

      Thanks Alison. That's exactly what I'm feeling. It is my right side also affected by TN. From bottom of nose to above eyebrow and my upper jaw. Where is yours and what are you taking?

  • army183
    army183 joanne49021

    Posted

    Yes, see eye doctor or your general practitioner anyway. Often the stress of talking clearly during important conversations does cause flare ups of pain. My eye-surround is a trigger point for me anyway. I had to pack up a Skype session at work because the stress of speaking slowly and clearly was too much and my eye/lip became very painful. Also I couldn't "mouth" the words very well and so sounded like I was drunk.

    You need to clarify your symptoms so please do see a medic. Are you only on that drug? Not on carbamazepine (Tegretol)?

    Good luck

    Big D

    • joanne49021
      joanne49021 army183

      Posted

      Thanks Army...........I am calling my opthmatogist today for appt. I had cateract surgery March 31 and April 7 last year. Was diagnoised June 15 with TN. I'm wondering if it had anything to do with it?

       

    • joanne49021
      joanne49021

      Posted

      Also Army............I am only on Gabapentin. I was on 900mg and went up to 1200mg two weeks ago. GP put me on Carbamezapime when first diag and I could not take it. I was totally comatose. Could not put one foot in front of the other. I have low tolerance for medications.
  • fred10352
    fred10352 joanne49021

    Posted

    I also experience pain in my my left eye when reading and watching tv for nearly as long as my TGN. I am not sure pain is related to the TGN, but I have been to several eye doctors with no solution.
  • susan33651
    susan33651 joanne49021

    Posted

    Hi,

    I'm unlucky enough to have TN bilaterally and in all three branches of the nerves, this was confirmed by a Neurologist recently. The very worst of the pain is in my left eye and over the eyebrow of the right eye. Frankly nothing compares with this pain. I really struggle to find a solution. Heat helps as does as many prescribed drugs as are available!!! But this reduces rather than gets rid of it. When this flares up I'm incapacitated and confined to the sofa with cycles of pain lasting for as long as 20 hours. It is literally hundreds of attacks one after another with no respite. I can appreciate why it is called the suicide pain. Speak to your doctor and try whatever he suggests and what you think may help, even if it is seemingly silly.

    Good luck

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