Connection between PMR and hives or urticaria?

Nothing to do with the question!!     But I love to know how people come by their nicknames on here.  Flipdover is very unusual.  

Regards from nosey Constance.

constance my nick name at work and some of my friend called me mad mags, because they said i was, caould not help being happy!

Well, as long as you aren't mad anymore!

Greetings fr C.

lol, I didn't actually read it before posting :-)

Ah, my name.....I've been called Flip since I was 8 - started by primary school teacher. My real name is Felicity - which doesn't suit me AT ALL! It's interesting how you 'grow into' a name don't you think?

Any way, from there it developed into Flip Dover. Pretty funny huh? I use it all the time and have been seriously considering changing my surname to Dover for quite a while as I'm still using my married name despite being divorced for over 15 years. And I don't like my maiden name either.

I've never heard of Felicity being shortened to Flip either!

I suppose one does "grow into" one's name.  As a child I was called Connie, when we moved from Oxford to London lots of people called me Con (I hated that)!  When I moved to Germany, where I still am - after 44 years - people called me Constance and I am rather 'constant' in what I do.

I've always thought it strange when people kept their old married names - especially if it was an unpleasant divorce (well, I suppose it's always unpleasant)!!!

Greetings from C!!!

Constanza? That's what I always think when I see your name as I knew a very young Constanza - about the same age as my girls.

I think I have heard of a "Flip"...

Hi tavidu, i read your post which you sent to Jon02168, i too have urticaria and take 1 fexofenadine prescribed by the doctor, it does not seem to go away completly.

You say you have it on your upper body, does they apply to your neck as well, as my neck is affected also my eye lids and lips, i am trying to gather as much information as i can, so that when i see my doctor next time i can tell her.

Hi margaret, I do get a slight itch around my neck but have never noticed a proper rash and I try to avoid scratching it. Normal places are chest, back and arms and once I got it on my inner thigh. The first time I got it for approx 3 weeks but it seems to have reduced since taking the anti histamines. As normal it always seems worse at night time. Hope this helps.

Hi Tavidu, many thanks for your feedback, its seem to be never ending with me, the itching seems to be easier, but the rash and weals are a night mare, and as you say always worse at night.

I did see my doc about it late last year and to start with he didn't even think I had PMR so made me reduce preds from 21mg to 10mg in a week, it was only when I presented myself 10 days later with a flare etc thtat he changed his mind. He thought that the rash etc was also hives but since then I have lost faith in doctors so am dealing with it myself. I would be interested in any feed back if you decide to see your own doctor.

I will let you know what my doctor says when i go

I have the urticaria (hives) as well an angioedema...from the top of my head to the bottoms of my feet. I called the Rheumy DR on Friday and asked if he thought it might be from the PMR itself...or a reaction to Prednisone. His reply was to get off the Prednisone for one week and then call him. I am off two days now and still have the hives (which are worse at night) and blurred vision, tightness in my chest. I don't have a sore throat but it feels like there is a lump in there. Can't sleep...never can. Have pain from the upper half of my right arm to the upper half of my left arm (and everything in between). This is like starting over with the first symptoms I had when I went to the Rheumy DR. I might have to put myself back on 5-6mg where I feel the best.

I  thought it was not safe to come of the pred just like that, 

I dont itch anymore, my eyes are not as puffy, but my lips still tingle, not as often and the cold feeling i used to get all the time only comes on every so often now, my right side of the throat is tender(will tell doc on wednesday)it feels as if there is a lump there, I have taken Fexofenadine for 18 days now, but want to see if i can come off it.

Hope you can get some relieve from it , it is a pain , Please let me know how you go on.

Telling you to stop your pred overnight when you are still on 3mg after long term pred is a bit silly, it isn't low enough a dose ot be sure your adrenal glands can cope on their own. And if you still have PMR (which if you felt best at 5mg) all that will happen is the symptoms will resurface as you develop more inflammation - the pred didn't do anything with the underlying cause, it merely manages the symptoms.

sorry - should be (which, if you felt best at 5mg, is likely)...