1. Community
  2. Chest and lungs
  3. Sarcoidosis

Cough coming back while on methyltrexate

Posted , 5 users are following.

monica62597
monica62597

I take 12.5 mg of methyltrexate at the moment and my cough and some shortness of breath has been coming back!My specialist did an x Ray again which looked fine but I go for a cat scan tommorrow!My sarcoidosis is in my lungs and it showed this past June everything had shrunk in my lungs!I have been on the methyltrexate most of this year!Anyone get their cough coming back while on it

0 likes, 8 replies

8 Replies

  • monica62597
    monica62597

    Posted

    P.s.I am posting this for my husband!He has sarcoidosis and I told him there a forums with people who have the same and he could ask a question of others.So I am asking for him.
  • chris0814
    chris0814 monica62597

    Posted

    Hi there,

    Yes I got my cough back on methotrexate 20mg 10 in each leg once a week. The treatment that has help is the inhalers. I am now on Remicad every 2 weeks IVS. We are praying this works for the relief of this awful disease. I have had this for 15 months and a 56 year old white male.

    Chris

  • tangles
    tangles monica62597

    Posted

    Hi Monica

    Yes the inhalers help. In Australia I use Ventolin it might have a different name in your part of the world. Ask your family doctor or specialist which ever one you will see first. Happy new year to you.

    Regards

    Tangles

  • Mrs.L386
    Mrs.L386 monica62597

    Posted

    My husband has a cough every now and then. He has now decided to go on Hospice. He feels it's the best decision for him.

  • scott93598
    scott93598 monica62597

    Posted

    My wife Monica had been messaging for me now I signed up my self.

    I still had a persistent cough. But on Dec 28th had a CT Scan and all sarcoidosis is gone in my lungs. The doctor is keeping me at 12.5 mg of Methotrexate for the next six months and then is going to wean me off. Like I said still coughing. Then looked closer into a couple of other mess I take and one has a side effect of coughing. Talked to GP to see about stopping it and I have. Have already noticed that my coughing is going away.

    • Mrs.L386
      Mrs.L386 scott93598

      Posted

      How great all sarcoid is gone from your lungs! THat is such good news. I'm really happy for you.

    • scott93598
      scott93598 Mrs.L386

      Posted

      Thanks. My Pulmonoligist told me that sarcoidosis can run one of three ways. One, it's just a flare up treat it and it goes away. Two, it will flare up from time to time and treat it with med till it goes away. Or third, where it is chronic and has to be treated pretty much for life! I'm praying it's a one time ordeal and I never have this again.

    • tangles
      tangles scott93598

      Posted

      Great news I will keep my fingers crossed for you.

      Tangles

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.