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Desparate need for better medications to treat Wet macular degeneration

Posted , 3 users are following.

bagladyNYC
bagladyNYC

I am appalled at what medications are available to treat wet macular degeneration. I pay attention to side effects. They are real, as I have learned. I have had one shot of Avastin and am in the process of looking up more side effects. Blindness? Stroke? Why should I take a medication that could cause me to go completely blind when wet mac will only cause partial blindness? Do I want to go partially blind or suffer for the rest of my life with a stroke? I'm almost 79. Can't help but wonder if the lack of interest on researchers' part is because this is dealing with old people who are going to die anyway.

0 likes, 5 replies

5 Replies

  • sue21470
    sue21470 bagladyNYC

    Posted

    get well soon. sa and ra
    • bagladyNYC
      bagladyNYC sue21470

      Posted

      Thanks, Sue. Eyes are very bad today. Attended a funeral and could not read the bulletin right after I sat down. By the time the service started, I could read it, but it bothered me. I was glad one of my daughters drove me there and back. Dread calling the retinal guy for fear the other eye has gone wet. Am seeing double lines on the Amsler Grid with dots--both eyes, now along with a lot of blank spaces, but I'm not seeing wavy lines with that eye.
  • peds30131
    peds30131 bagladyNYC

    Posted

    Hello hope u r better.I am just curious to know where one can get the Avastin injections because my father is coming to visit for a few months from South Africa he has been Avastin Injections for well over a year. So while he is here it would be ideal if he continued his treatment.Would appretiate it if you could perhaps tell me which specialist performs the injections. Thank You
    • bagladyNYC
      bagladyNYC peds30131

      Posted

      Mine is injected by a retinal specialist who was referred by my ophthalmologist. The retinal specialist ran his own tests as well. Did not go by the test run by the ophthalmologist. Mine are in a group. I would start by contacting one in your area and ask them what you need to do. Probably a letter from his doctor would help.
    • sue21470
      sue21470 bagladyNYC

      Posted

      My Dad is 85 and has poor eyesight in his right eye after bleed on retina.

      This has dried but  Specialist says little can be done now as my Dad refused an op because he feared it may cause him to lose eyesight in his right eye. I had to respect my Dad's opinion although I wanted him to consider this op. I think after 4 years it is too late to have this op. is this right? However last year they removed a cataract on his right eye but his vision did not improve.

      Dad also has macular degeneration on his eyes and needs 6 monthly eye tests to protect his vision more. Is all this Diabetes Type 2 related I wonder. Also Dad has an irregular heartbeat and is on Warfarin to thin his blood and prevent blood clots and protect his heart 2.

      Please can you advise about dry type age related macular degeneration.

      Dad is concerned about possible future cataract op on his good left eye. Is this a risk to his eyesight 2. Thank you. God bless Sue confused

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