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Discoid Lupus Erythematosis

Posted , 6 users are following.

Guest
Guest

I was diagnosed with DLE 6 months ago ( a 28 year old girl) and am on hydroxychloroquine treatment (topical stroids weren't helpful) . new lesions stopped from developing but the old ones (all on scalp) are really annoying for their disfigured hairless scar-like shape. I would really be happy if I knew there are solutions to this problem... :roll:

0 likes, 7 replies

7 Replies

  • babycham
    babycham Guest

    Posted

    Maybe if there is still anyone out there who reads this, i d be interested if they'd let me know what other symptoms are for lupus as my brother had it. Well his was Hughes disease (still lupus) sticky blood call it
  • hannah63404
    hannah63404 Guest

    Posted

    Hi im 26 and I have dle had it about 4 years tried creams and steroids I have tried hyroxychloroquine and methotraxate thialidamide none worked but chlorquine iswhat I am on now and it has mostly cleared I still have scars but even they seem alot better. Hope this helps I know what it was like when I first had it 
    • meikakay
      meikakay hannah63404

      Posted

      Was this medication in pill form or creams?  I was diagnosed with this about 14 years ago. It had went into remission but still had scars. Now it has started up again.  I was just wandering if they had any new treatment the last several years.  I too was on the hyroxychlorquine pills and some creams I do not remember what they were
  • babycham
    babycham Guest

    Posted

    Hello I'm sorry for your problems, wish I could help. I am also on same medication, I started on two  200mg tablets a day then after 6 wks I had to lower to 1 a day. Are you on the same dose? They say they are treating the symptoms in my case, as the biopsy wasn't conclusive. They think its Sjogrens, although family member had lupus.I am exhausted all the time it seems.  chatting on here, get an answer back, where I don't have enough energy with aches can't reply as soon as I'd like. Never mind tomorrow's another day.  
    • hannah63404
      hannah63404 babycham

      Posted

      Yes im on 200mg 1 day. And seems to be working for my dle.
  • kathryn42340
    kathryn42340 Guest

    Posted

    I too have discoid lupus my chest and arms are cover with painful itchy sores. I have had no luck with doctors. It comes every spring and goes away in the fall.. If anyone has a remedy for the sores I would love to hear it.
  • kathryn42340
    kathryn42340 Guest

    Posted

    I have had discoid for years tried all Meds. The sores just keep coming are there any home remedies I could try... HELP
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