Diverticular Disease
Posted , 35 users are following.
I have now had diverticular disease for the last 12 years and have a flare up every 6 months. I have apparently 6 pouches in my colon. I still do not know what foods to eat and to avoid. I have from my own experience stopped eating certain foods. I do not eat anything with seeds in ie some fruits have seeds so the only fruit I eat is melon pineapples bananars. The doctors say you should have a high fibre diet then they say do not eat seeds. I have just discovered that I should not be eating rice. How about baked beans should I eat these or not? Please could someone tell me as at the moment I am going mad not knowing what I should be doing.
4 likes, 56 replies
Guest
Posted
I have had diverticular disease since diagnosis in 1999 which was the same year as my husband died of bowel cancer - great timing eh ? I had a large rectal bleed and the usual investigations followed ! In 2005 I had a really acute attack and was told that it was \"SEVERE\". I have coped with it quite well but during the last 14 months it appears to be getting worse. The pain and \"strange\" bowel movements are my biggest worry, pain being almost constant. GP's dont seem to be terribly interested but it can be very hard to live with, as you well know.
I was given a leaflet on what to eat and what not to eat and yes agree with you - on one hand - increase fibre - on the other - diet is very restrictive.
If this gets to you - when I receive your reply I will give you the info I had from my consultant.
Look forward to hearing from a fellow \"div\" sufferer.
Val
tinamaguire_824 Guest
Posted
Please could you forward the leaflet you were talking about I'm at my wits end with this disease. PLEASE HELP!!!
ann27613 Guest
Posted
Hi Val new to this forum just reading your post and wondered if you could send me your leaflet that your consultant gave you,haven't been given anything like that. Going through hell with it at the moment,waiting to see a consultant again. Ann 😱
52331 tinamaguire_824
Posted
Since that meeting I have had not one flare up and pain free. I take it twice per day.
elaineypainey
Posted
Best wishes
Elaine
Juliet_Bravo
Posted
Please stick to the high fibre diet, it really does help in the long term. Not eating fruit with seeds merely means not eating the seeds, so apples, oranges, pears are all OK, but not strawberries (sorry) or kiwi fruit. I personally eat a bowl of porridge every day for lunch and vary it by adding dried (no added sugar) fruit to vary it. I also sometimes add a sliced banana. This is because the small seeds can get trapped in the diverticular pouches where they become infected. Believe me, you will know about it then!
If you are suffering from bloating, wearing loose clothing will reduce the pain; try and go to the toilet regularly rather than waiting till it becomes uncomfortable. I sometimes find the signals are not reliable, so I aim to go at roughly the same times each day.
I hope you find this helpful, but please contact me here if you wish to.
All the best.
Juliet
DDwithDD Juliet_Bravo
Posted
52331 Juliet_Bravo
Posted
Since that meeting I have had not one flare up and pain free. I take it twice per day.
pat76465
Posted
years I feel I need some kind of support from other sufferers to give me the strength to continue to cope with the violent pain of the spasms endured.
I used to get about 3 attacks a year but last year I decided to lose some weight (over 2 stones) and changed my eating habits to a more healthy diet.. Since then I have had one attack in the last year now. But for me that is one painful attack too many.
Now I want to share other people's views on how they cope with their condition in a bid to control my own.
All advise will be gratefully received.
Thank you.
DDwithDD pat76465
Posted
ann27613 pat76465
Posted
Hi Pat new to this forum I'm in so much pain at the moment any advice would be great if you don't mind!!!
Ann
52331 pat76465
Posted
Since that meeting I have had not one flare up and pain free. I take it twice per day.
DDwithDD elaineypainey
Posted
jacqueline01135 DDwithDD
Posted
disease. I spent almost two hours with a paramedic last night.bad
reaction to an antibiotic Swollen lip,heart rate of 86 sore tongue.
This Disease !!!!! is now taking over my life ,or I should say NO life.
The amount of genuine interest shown by any of the "" Medicals""
can be listed in the Out tray
It would seem that probably breathing can bring on an attack,and
hardly anything can stop it until the rubbish has left your body
I now have the task of contacting my doctor ,and give him the good
news, as suggested by a doctor ,via the paramedic My doctor, and I use the word loosely ,will be annoyed. to have to deal with me yet
again.
I believe we are now given the cheapest , generic medication for
any illness, and in consequence have to suffer the side effects. as
well as the problem.
As a matter of interest what antibiotics are you given, if anyone else
reads this post, please share your pills and especially if they work.
and the ones that cause probs
Will tell you the result of my phone call
DDwithDD jacqueline01135
Posted
jacqueline01135 DDwithDD
Posted
products that are supposed to make me better, and IN FACT make me
WORSE It seems that the pouches AKA dustbins seem to be the root
cause of flares the sensible way would be to take a mild laxative regularly
excuse the pun and stop the rubbish collecting and festering in the first
place
jacqueline01135 DDwithDD
Posted
Good old Paracetamol???
Is It O.K. to endure the pain for as long as it lasts, or would there be
serious consequences by not doing anything ?
and who cares anyway
DDwithDD jacqueline01135
Posted
jacqueline01135 DDwithDD
Posted
Indies , where all D.D sufferes are made to go until they get well
Looking out of the window at the pouring rain, waiting for a doctor to ring me
. I WISH
jacqueline01135
Posted
Stop the tab that gave me a fat lip and a galloping heart
Keep on with the one that just makes me nauseous and, and, wait
for it -------------------- Paracetamol-----------
juli11199 DDwithDD
Posted
madge07350 jacqueline01135
Posted
madge07350 jacqueline01135
Posted
I had a very bad reaction to the antibiotics they gave me in the hospital -they made me feel worse by far than the symptoms. I have since discovered that Ciprofloxacine can have some very nasty effects on some people including rupture of the Achilles tendon up to 9months later.
I am lucky in that so far flare ups do not give me very bad pain more like a constant dull ache but with some sharp jabs before needing to have a BM.