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Do I --- Don't I ????

Posted , 7 users are following.

jacqueline01135
jacqueline01135

I have recently changed  surgeries, and we were discussing My DD

and I asked if  there wa a dietician or nutricianist  attached to the practise.

No, was the answer . Why. ?? So I told him that WE Divi sufferers were

floundering in the dark ,about food, or lack of it,

His reply was ----- eat what you like until a flare occurs ,then eat a low

protein diet.  

Now,  what do you fellow  flare sufferers think about that  ???

protein diet. 

0 likes, 27 replies

27 Replies

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  • maryanne46
    maryanne46 jacqueline01135

    Posted

    Hi that's very reassuring lol. It may work for some not others. Everything I find is trial and error. Think there is not enough support with this condition.

    • jacqueline01135
      jacqueline01135 maryanne46

      Posted

      Very early morning to you Maryanne, to say I was surprised by his

      blase attitude , it was obviously unaware that we all fight NOT to get a flare. I can only say ,that he is unaware of the pain and more pain

      that a flare brings on, 

      If only there was someone ,,somewhere ,who could just take time

      out and explain thoroughly the food problems and worry that we

      all go through ..Trial and error is all very well, but then it is too late.

      and we are back with the same scenario ,,,hospital . drips ,and

      a colon that is in danger of being removed,

      Needless to say,, I have ignored his ""advice"" 

    • maryanne46
      maryanne46 jacqueline01135

      Posted

      Hi

      Good for you. Yes I know exactly what you mean. Just hate taking time of work because of this condition. Although my work are very supportive of this thank goodness. I live in Devon and will research if there are any support groups about. It's good that I found this forum but think it's also good to actually talk to those who have the condition. Do you have anything near where you live??

    • jacqueline01135
      jacqueline01135 maryanne46

      Posted

      In a word Maryanne NO,, I am my support group, In fact ,I started a

      forum caleed Divi Diners ,for help,with this FOOD  problem ,the response

      was amazing, and such a wealth of ideas and suggestions. because

      DD was new to me ,and no one in the medical department to offer

      help. just a diet sheet .Now there are so many of us "Thank Goodness" that come on with information, that we find out for 

      ourselves 

      Try the forum it's called Divi  Diners ,you can find it on Google ,or

      through the Diverticula group.

      sadly ,you are the other end of the country from me .Yorkshire ,so 

      a coffee and a moan are not on the menu (pardon the pun ) 

      However ,,,we are but a few buttons apart,   

    • jacqueline01135
      jacqueline01135

      Posted

      You see I  have invented a new word,, it should read CALLED, not

      CALEED .

  • appendectomy
    appendectomy jacqueline01135

    Posted

    I stopped eating meat through choice for a year, this was a few years before i got diagnosed but I remember very well the good effect it had on my guts. I would try it if I were you for a while. Also, I noticed I become a bit lactose intolerant after diagnosis. Not unusual in digestive disorders as the flora and enzymes are unbalanced. Also more likely to happen as we get older
  • linda346
    linda346 jacqueline01135

    Posted

    It's a funny old world! No one really understands what this disease is like unless they actually suffer (and I mean suffer!) from it! After my recent problem with bleeding I needed a CT colonography as not able to have a colonoscopy. My consultant said all looks ok tho can't be certain there's no cancer! (He said the same 12 years ago when I was diagnosed) asked me what I ate, I told him I eat only low residue now and he turned to the trainee doc and said 'yes, if someone has a lot of pockets the colon narrows and you can't eat fibre'. Luckily I had researched this 5 years ago when I changed to low residue but I wondered why GPs, consultants etc don't give this info to patients instead of banging on about 'lots of fibre' - my family are very considerate and my husband and daughter check menus first if we're going out to eat to see if there's something I can eat! (Usually not much so Italian it is then!!!) but even my husband sometimes says 'just give it a try' re food and really why would I as it's taken me all these years to realise exactly what can bring a flare on (root vegetables, beef, pork, lamb, fibre, processed meats, eggs etc etc!) Your surgery seems to think a flare is a little tummy ache!!!! It's comforting to know that WE all understand - sending calming vibes to everyone's colon out there!

    • madge07350
      madge07350 linda346

      Posted

      There are theories that it is the advice to eat a high fibre diet that is actually causing DD! The reason being that most peoplevare consuming that fibre in the guise of wholewheat bread and bran cereals etc rather than extra veggies. This is insoluble fibre and has the result of producing larger stools that distend the colon and put pressure on any weak points et voila pouches.
    • linda346
      linda346 madge07350

      Posted

      Yes I think that is the case, you are right. My DD was caused by bad constipation for 2 weeks, and my doc told me to take fibogel but didn't point out that I should drink lots of water at the same time so I got properly bound up, fever, bad pain and was ill in bed for another 2 weeks and lost a lot of weight, that was the start of it - I feel my low residue diet is right for me, I have very few flares now (touch wood) I try to drink 2 litres of water a day and the lactulose is magic! Just softens everything so it goes through the colon easily. I do find generally the medical profession doesn't know much about DD. Kings College Hospital has the only specialist DD department in the country, I think we need a few more!!!

    • appendectomy
      appendectomy madge07350

      Posted

      I totally think insoluble fibers are the culprit. It wasn't really a staple product years ago but I grew up in 70s and it appears they add it to everything now. I also believe some people inherit the worse form of diverticulosis that progress to diverticulitis. Remember only 15 % of all people with diverticulosis have diverticulitis. Of them 15 only something like 2-3 % have another flare!

      That's the statistics but it seems a lot more common than that. Yeah, steer clear of insoluble fibers.

  • madge07350
    madge07350 jacqueline01135

    Posted

    My gastroenterologist maintains that what you eat makes no difference! LOL !Pointless asking doctors about nutrition for any condition. They are useless. I do find that tough meats cause flares and even well cooked tender meat has to be restricted. Luckily I like fish
    • madge07350
      madge07350 jacqueline01135

      Posted

      Not exactly on call. It takes about a month to get an appointment. But I do have a number to call if I need to go into the clinic ( our insurance is good for a private clinic here). Having been floxed at the last one I can't say I'm that keen and I don'the fancy the op she wants me to have either!

    • jacqueline01135
      jacqueline01135 madge07350

      Posted

      Madge,,, please remember you are talking to foreigners  ,What does

      FLOXED mean  ?? you were damaged ,,,or ripped off. ???

      i have tried to access .consultants ,and others privately,to pay,, but 

      the stupid thing is You still have to be referred by your G.P ,but super wealthy won't have this problem.

       

    • madge07350
      madge07350 jacqueline01135

      Posted

      Floxed means have a bad reaction to a fluoroquinolone antibiotic such as Cipro and then suffering from Fluoroquinolone toxicity syndrome. Plenty of info online about this - there is even a forum on this site. The health service here in Francestor is much better than in UK but you do have to have a top up insurance unless you are very poor. Then you do not have the option to go to a private clinic and have a longer wait at the public hospital.
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