Does anyone have nausea with this disease???

Hi there,

I am 27 and have Sjogrens, Coeliac disease, and also have had my gallbladder removed. And yes, I have nausea all the time. I really feel your pain as it is awful to feel sick on a constant basis.

My Rhuematologist said that Sjogrens can upset the digestive system and that nausea can be associated with digestive problems so it's a matter of eliminating the things that cause even more irritation.

How long ago did you have your gallbladder taken out? Have you been checked for any complications such as blockages still in the duct? Do you have any food intolerances that may be causing your nausea? E.g Dairy?

For my nausea I know it is made ten times worse if I consume dairy so I try and stay away from dairy as much as I can. For me personally I have terrible anxiety as I have been sick/nauseous for so long so I am anxious to go places as I may feel sick or be sick. Could your nausea be brought on or made worse by anxious thoughts?

Sorry I can't be more helpful but maybe a few things to think about.

Aug 18, 2016 - Sjögren syndrome is a systemic chronic inflammatory disorder ... which can cause early satiety, upper abdominal discomfort,nausea, and vomiting. ... Patients with Sjögren syndrome may report fatigue, joint pain, and, ...

emedicine.medscape.com/article/332125-clinical

Hope it helps!

Just found this!

I too have experienced this as well, i have had SS diagnosied for 22 years now, and I have only experienced this the last few years actually, i have waves of it, is the best way to describe i can smell vomit just on the outside of my nose and it makes me vomit, it comes and goes,  but it is a very strong smell, I think SS has gone to my brain that is why i have it ... 

Hello Chrystal,

?I have had similar issues!!  My Sjogren's has gone inside to my organs, my liver, kidney's, but mostly to my intestines, and has irritated the heck out of my stomach.  What my Gastro doctor has done is give me a very low dose of Amitriptiline (sp) and it has helped tremendously!!  He has also put me on Protonix which has helped a great deal.  So, between the two they have really settled down my stomach and intestines, and gotten rid of the nausia.  You might want to try seeing a Gastro doctor, that is who found out what was wrong with me, you will have to go through some tests, which will not be fun, but they will get to the bottom of it, and once they get you on the right meds, you will feel much better! 

?I have tried every diet, I eat very healthy, I eat mostly all organic, or as much as I possibly can.  Nothing has helped me...although it does help some people, it does not always help all of us.  I know not everyone likes to take meds, but after suffering for so long, it just was not worth it for me, and I do feel much better now.  Of course it is up to you, and what you feel it right for you.  Just don't let people make you feel you are doing something wrong what ever choice you make!!  I had people telling me I didin't need meds, well I waited too long, and really put my health at a very big rist!!!  With my liver, and kidneys being involved...it is NOT something to be messed with!!  Believe me!  It has taken over a year to get my body in working order and thanks to listening to people, I am now in kidney failure, and that is taking a lot longer than the doctor had hoped, but it is getting better.  So, just don't let people tell you it is in your head, and all you have to do is eat right...that is not always the answer, as I can atest to!  At the very least, make sure you get checked out by your RA doctor, then see a Gastro doctor, those two will be able to help you out!!  They will also be able to know if you need to be sent to another specialist, like in my case, a Kidney specialist.

?I wish you good luck Chrystal!! 

I have nausea every day. The docs thought it was my gallbladder so I had it removed 1 month ago but I'm still nauseous. Now we are trying to find out if it is medication so I am eliminating them one by one. Hopefully this will work butvin the mean time my pain level and other symptoms are worse. It we can't add meds right now. Reading on forums I have noticed that a lot of Sjogren's patients have issues with nausea. I'm praying this isn't something I will have to learn to live with because right now I'm not really living.

As tj has quoted, Sjögrens can cause "early satiety, nausea and vomiting". If your nausea continues (I'd give it a bit longer to eliminate other causes) I'd be inclined to ask for a GES test (Gastric Emptying Study/Scintigraphy) or equivalent test. This test will assess how long it is taking for your stomach to empty both the liquid and the solid foods.

Two radioisotopes are added, one to a light meal like scrambled eggs and another to a drink and the machine measures how long it takes for the radioisotopes to pass out of the stomach.you have to lie under the machine for up to two hours. 

For me the result was I had no emptying for solid food and almost normal emptying for liquid. The solution wasI needed to be on a totally liquid diet. This included pureed soups, thickshakes, custards, yoghurt etc. After a couple of years I was able to tolerate small amounts of white rice and fish.

Otherwise I stayed on this liquid diet for over five years with the help of regular doses of Domperidone (Motilium). Eventually about two years ago I found I could eat more until now I am almost able to eat anything albeit smaller amounts. I still need to take Domperidone.

The symptoms were horrible. I lost over 20 kgs of weight and became quite scrawny. I felt dreadful most of the time until they got to the bottom of it and I started the meds and the diet.

I hope you don't have Gastroparesis (paralysed stomach) nor intestinal dysmotility as they are no fun!!!